• Replies 5 replies
  • Subscribers 25 subscribers
  • Views 1362 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Got diagnosis of for my son today

dawnyp

After 2 and a half years of assesments with cahms I finally got a diagnosis of ASD for my 9 year old son this afternoon and I think I'm in shock, I've been home just over an hour and I keep crying. I wasnt expecting a diagnosis today, I thought it was just a follow up after an ADI. He didnt meet the criteria on the ADOS last year so I thought that meant he definitley wasnt on the spectrum. PDD NOS was disscussed and I thought he might possibly get a diagnosis of that at some point. But the ADI and something called a DSM 1V have shown him as being on the spectrum. Apparently he is a very complex case. Is it normal to be so shocked/upset? Its not like I didnt know "something" was wrong.

Parents

  • Thank you so much for your reply. I'm afraid it did start the tears rolling again.. but in a good way! Hearing from someone with similar experiences definitley helped. Yes I had almost convinced myself that nothing would come of it, half of me thought they would eventually tell me either they didn't know what it was or that he was just a little sod and would grow out of it. School have been great and have already applied for a statement, they have been treating him as if he already had a diagnosis and all the strategies that they have put in place have really helped... if he's happier at school he's happier at home and visa versa. May I ask how old our ds is? I havent told my ds who is 9 about his dx, he has never asked why he was going to all the appointments at CAHMS I think he assumed it was about his ears as he is also under ENT after having grommets. I didnt want to tell him that he "might" have autism incase it turned out that he didn't. So that is next on the agenda. he already knows that he doesn't always fit in and that he looses his temper and cant control it but Im not sure how he will cope with or even understand what I have to tell him. Any advice would be greatly apprieciated and thanks again.

Reply

  • Thank you so much for your reply. I'm afraid it did start the tears rolling again.. but in a good way! Hearing from someone with similar experiences definitley helped. Yes I had almost convinced myself that nothing would come of it, half of me thought they would eventually tell me either they didn't know what it was or that he was just a little sod and would grow out of it. School have been great and have already applied for a statement, they have been treating him as if he already had a diagnosis and all the strategies that they have put in place have really helped... if he's happier at school he's happier at home and visa versa. May I ask how old our ds is? I havent told my ds who is 9 about his dx, he has never asked why he was going to all the appointments at CAHMS I think he assumed it was about his ears as he is also under ENT after having grommets. I didnt want to tell him that he "might" have autism incase it turned out that he didn't. So that is next on the agenda. he already knows that he doesn't always fit in and that he looses his temper and cant control it but Im not sure how he will cope with or even understand what I have to tell him. Any advice would be greatly apprieciated and thanks again.

Children
No Data