I don't really know where to start, Perhaps if we had all day !
I will go through the basics and see if this has happened to anyone else, I have a son who is 8 years old with ASD, Through fault of the school and our decision we took him out of school 2 years ago.
The classes were to big and the noise , The school kept swopping helpers, carers etc.
I have two other children and have found it very difficult to home teach him, He gets bored after 10 mins and has had enough, The education board came last year and stated that my son has the academic age of a 5 year old. They all so basically stated they did not see it fit to teach him at home.
I know my son and school is not for him even though, I know he should have friends his own age.
The problem now is 1. He will not learn at home, Not as much as he should 2. He has started to get worse behaviour wise with his rituals, It takes approx 30 minutes to get him out of bed with all the rituals, Twice I have refused to do them and he sat at the top of the stairs both times for 10 hours. On his own with out a drink or food, Until I carried him down stairs.
He will not go outside and walk, and he will not wear shoes or clothes, Only pink pj's and pink slippers.
He complains that his feet hurt, But there is nothing wrong with him. 3. His sleeping is dreadful, He goes 2 weeks in a routine and then he will be off for two weeks being awake 17-20 hours per day. He is only little so I have to stop up with him. Half the time I am shattered like typing this at 4.53am. been up all night.
He won't sleep in his own bed and will only sleep with me. WE have no help from any one health wise or other wise, We have been left to ourselves for the last two years, No one is intrested.
He did have a statement at school, But no more. The doctor the last time I saw her suggested putting him on a sleeping medication, which I am not keen on, That is the only advice we have been given.
There is a special school but we have been told there is no help with transport and with his sleeping being erratic, He would be off school more than he is actually in.
I hardly go out the house only if my husband babysits for a while, We live away from the family.
It is disrupting all our lives as a family, We actually went to a tribuneral to get the DLA and Careers allowence and were told that we could get no help as our son could walk, But refused so that was the end of it.
I was thinking about seeing my doctor again and explaining everything, But the help she put us in touch with last time was a complete waste of time. I know it sounds stupid but I don't want to tell the doctor, I am finding it hard to cope. I just have this vision of Social Services getting involved and me loosing my beautiful loved to bits son.
Any Idea's ?
