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Coping with diagnosis

Handi-andis
over 7 years ago

Hi

i recently had a formal diagnosis of autism (RAAD-R 189/240) having suspected for a while and having self assessed with the ASD-50 (37/50), Aspie Quiz: high functioning autism, and the Empathy Quotient (13). I'm a professional engineer running my own small business, although struggling to find sufficient work due to industrial down turn, and I have also recently re-married. Surprisingly enough, I don't know what to do with the diagnosis or what to think about it or how to cope with it. I know I'm not coping well with things in general and need help, but don't know what help or sort of help that I need or where to turn for it. I know that I can't be the only person to find myself in this position or feel like this, so I'm reaching out to hear and learn from other peoples experiences. So how did you cope and what did you do?

Thanks

Andy

Parents
  • over 7 years ago

    Handi-andis said:
    Surprisingly enough, I don't know what to do with the diagnosis or what to think about it or how to cope with it. I know I'm not coping well with things in general and need help, but don't know what help or sort of help that I need or where to turn for it

    absolutely! Which is really frustrating because I still keep telling myself if I try harder I'll get it right. I'm battling with it at the moment just trying to keep hope that gradually I will make the most of the information and be able to move forward.

  • over 7 years ago in reply to Misfit61

    Yep, and I just want to be able to relax and not have to try so damn hard all the time.

    why also has my hearing gone even more damn sensitive to background news than it was before. The supermarket earlier with my daughter nattering away was torture 

Reply
  • over 7 years ago in reply to Misfit61

    Yep, and I just want to be able to relax and not have to try so damn hard all the time.

    why also has my hearing gone even more damn sensitive to background news than it was before. The supermarket earlier with my daughter nattering away was torture 

Children
  • over 7 years ago in reply to Handi-andis

    Oh yes. That makes sense to me. The older I get the less I seem to be able to cope , less stamina, less reserves etc and finding ways to build them up is harder too. Other people in general are tiring for me but sometimes they are the ones that can give us a boost. 

  • over 7 years ago in reply to Misfit61

    I do have meltdowns as it is, but I think I am generally burnt out which is why I'm not coping where as I used to be able to. If that makes any sense 

  • over 7 years ago in reply to Handi-andis

    Neither of those easy to tolerate.. there is a post about background noise which I also have trouble with... I think the relaxing and not trying so hard thing is that you've just got to give yourself permission to do that and if necessary tell those you need to that that's what you'll be doing. Because if you don't give yourself some slack for even part of the time you will eventually possibly either have  a meltdown or burn out. I live on my own and not responsible for a spouse or child so realise that's a very different situation.