Help! Are there any women in this Community with ASD

Been good to hear from any adult ASD diagnosed women in this forum... or does anyone know any good sites for ASD women?

Hello out there......anyone???? 

Parents
  • Hi there, I'm also one of those strange women that can't really complain about a lack of empathy. The people that diagnosed me with level 1 autism (that's what Asperger's is called now) were quite aware of this though, they said this is what more and more research concludes, that quite a few people with ASD are actually quite empathetic but are overwhelmed by the intensity of that feeling or have difficulties to react in a suitable way. So the experts do (start to) recognise that, it may just take a while until it also gets to the more conservative ones among them. 

  • good comment and welcome....do you find that being empathetic and outwardly seeming to be "coping" means that you are sometimes exploited by others? 

    Due to the Aspies...being organised, reliable, hardworking, nurturing and seeming to be on top of things...(plus adverse to conflict)....I am a sucker to agreeing to help others as a way to try to accepted and to be "useful" as a way of trying to belong...

    sorry, that was an epic first message back....

    really glad that the research is seemingly seeping through to medical practice....

  • Former Member
    Former Member in reply to .

    I think that's why I ended up having to get a second opinion to be diagnosed. There are still too few fully aware of how to diagnose adult women and girls. 

    I spent several years training to and working with children and then caring for my mum but I used up my reserves and burnt out. So do try to keep a balance of giving, caring and fitting in with being yourself and recharging your own batteries. 

  • Former Member
    Former Member in reply to Spotty Tortoise

    well done. We have to be so determined to fight our own corner which is difficult for us. Yes the best thing is to go with lists and supporting information even if you leave it at the surgery for your dr to read then make an apt so they've had chance to read it and look it up. When it came to a second opinion I was prepared to go privately but my gp supported me and in the end the surgery gave me the funding. So stick at it if you can if that's what you want to do. 

  • Hi Spotty..... you keep getting lost in threads.....but I've found you

    sound advice.....I have launched a bet with isthisreal .... who is in her early twenties ...and also contemplating seeking diagnosis..that I will book an appointment tomorrow with my GP and challenge her to do the same....

    how are you today Spotty...?

  • I think you should go sooner rather than later as even when referred it's going to be a long wait for anything to happen unless you go privately, which I must admit I am starting to consider.  I chose one of the younger GP's in our practice and the first time she half fobbed me off but I went back quite determined, with more research under my belt and two A4 sides of scrappily written examples from my life that fitted the criteria.  Thankfully she was willing to read it and it was that which persuaded her to refer me as my spoken words let me down badly.  It is so confusing to find this incoherence as I used to think myself reasonably erudite.  Good luck!

Reply
  • I think you should go sooner rather than later as even when referred it's going to be a long wait for anything to happen unless you go privately, which I must admit I am starting to consider.  I chose one of the younger GP's in our practice and the first time she half fobbed me off but I went back quite determined, with more research under my belt and two A4 sides of scrappily written examples from my life that fitted the criteria.  Thankfully she was willing to read it and it was that which persuaded her to refer me as my spoken words let me down badly.  It is so confusing to find this incoherence as I used to think myself reasonably erudite.  Good luck!

Children
  • Former Member
    Former Member in reply to Spotty Tortoise

    well done. We have to be so determined to fight our own corner which is difficult for us. Yes the best thing is to go with lists and supporting information even if you leave it at the surgery for your dr to read then make an apt so they've had chance to read it and look it up. When it came to a second opinion I was prepared to go privately but my gp supported me and in the end the surgery gave me the funding. So stick at it if you can if that's what you want to do. 

  • Hi Spotty..... you keep getting lost in threads.....but I've found you

    sound advice.....I have launched a bet with isthisreal .... who is in her early twenties ...and also contemplating seeking diagnosis..that I will book an appointment tomorrow with my GP and challenge her to do the same....

    how are you today Spotty...?