Late Diagnosis and Outcome

Hi

I was diagnosed in May this year aged 46.

I referred myself for a diagnosis after many years of suspecting something was going on due to family and colleagues joking about my autistic behaviours.

I support people with autism at work and was always able to see and understand more than others why certain people felt a certain way or displayed behaviours as a result of something. That understanding came from my own difficulties and feelings from situations I experienced and could match that to those I supported.

Following the meeting, I was expecting a positive outcome of an autistic diagnosis as this would tick all the boxes that I had questions for regarding many aspects of my life.

When the confirmation came that I had high functioning autism it was both expected and a shock. What surprised me most was the shock aspect of it. It hit me like a ton of bricks and took weeks to come to terms with it. It was something I never expected to feel. It was meant to be relief and understanding. Instead I went through a whole grieving process as my life replayed out in my head and all those situations I've struggled suddenly had a whole new aspect to them.

What I'd like to know is, for others who were diagnosed later in life, did the confirmation of autism help/hinder/improve/devastate you in any way? 

Now I'm getting used to my label, I think it will help me. I've told my managers about it and as now they understand some of my complexities around certain things I do. I get certain allowances now which I felt I didn't get before.

I've not shared the news with anyone else. Not out of shame, but because I'm still me and once people know about the label, I don't want people thinking they have to be different around me or not be themselves when they joke about the things I do.

Regards, Lee

Parents
  • Hi Lee, I've been recently diagnosed at 55 years of age. I'm pleased as it has provided rationale, explanation and relief.

    It has left a bit of a feeling of "what now?" Nothing really changes for me.

    I was hoping for some degree of explanation; I've just been diagnosed as autistic. I was expecting a Level 1 or some further pinpointing to where I am on the spectrum. My paranoia has kicked in and I am now thinking am I really autistic, or have they taken an easy option because of my age, and little supportive childhood evidence other than from me. Is that usual to have no level?

    I would dearly love to speak face to face with other high functioning autistic adults to share experiences and see if traits are similar, but I can't see that happening.

    Best wishes.

Reply
  • Hi Lee, I've been recently diagnosed at 55 years of age. I'm pleased as it has provided rationale, explanation and relief.

    It has left a bit of a feeling of "what now?" Nothing really changes for me.

    I was hoping for some degree of explanation; I've just been diagnosed as autistic. I was expecting a Level 1 or some further pinpointing to where I am on the spectrum. My paranoia has kicked in and I am now thinking am I really autistic, or have they taken an easy option because of my age, and little supportive childhood evidence other than from me. Is that usual to have no level?

    I would dearly love to speak face to face with other high functioning autistic adults to share experiences and see if traits are similar, but I can't see that happening.

    Best wishes.

Children
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