Advise please

Hello, I am new to this forum and would like to ask advise from adults who are diagnosed  with asd. Do you think it is better if children understand their diagnosis early, we are in the process of getting my 11 year old daughter diagnosed. I am getting some critisim saying I am labelling my child and this will be negative for her. My gut instinct is that she is a clever individual and that if she has the right support from us she will better understand why she feels the way she does. Would you have preferred to know or would you have prefered not to know as a child? Thank you for your help :)

Parents
  • Hi Logic, if its any consilation my daughter is just turning 11 and was diagnosed last December. After my daughter was diagnosed the learning mentor at her school went through a booklet called 'i am unique' and it basically explains in childrens terms about autism and there is bits she can fill in herself. If gives some examples of things that she may be encountering for example: i make lots of friends easily., and she would have to tick the box if it is relevant to her. I have found that since she has been going through this booklet she is more aware of why she does things and it has helped some children in her class to understand her as she is getting confidence in saying to people i act like i do because im autistic and different.

    I think it is very confusing for children as they do things and dont really understand why but once they have a little understanding then they start to feel a bit more relaxed and take things as they come.

    As for people saying you are labelling....sometimes the only way to get the help is to have the label. It is hard to treat and understand something that doesnt have a name.

    Likewise if your child doesnt have an understand of why she is like she is it may become harder for her as she is growing up.

    My daughter knows and she says i am me, i am me with autism, nothing changes i and others just understand me better.

    Hope this is of some help to you.

Reply
  • Hi Logic, if its any consilation my daughter is just turning 11 and was diagnosed last December. After my daughter was diagnosed the learning mentor at her school went through a booklet called 'i am unique' and it basically explains in childrens terms about autism and there is bits she can fill in herself. If gives some examples of things that she may be encountering for example: i make lots of friends easily., and she would have to tick the box if it is relevant to her. I have found that since she has been going through this booklet she is more aware of why she does things and it has helped some children in her class to understand her as she is getting confidence in saying to people i act like i do because im autistic and different.

    I think it is very confusing for children as they do things and dont really understand why but once they have a little understanding then they start to feel a bit more relaxed and take things as they come.

    As for people saying you are labelling....sometimes the only way to get the help is to have the label. It is hard to treat and understand something that doesnt have a name.

    Likewise if your child doesnt have an understand of why she is like she is it may become harder for her as she is growing up.

    My daughter knows and she says i am me, i am me with autism, nothing changes i and others just understand me better.

    Hope this is of some help to you.

Children
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