Just Diagnosed

Our little boy was diagnosed 15 months ago when he was 3, he's now 4 years odl. I remember being sat in the car after his assesment with all the professionals after the diagnosis and crying my eyes out in disbelief. We have in a strange way been grieving for the little boy that we will not have and spent a long time being angry with the world. But now the dust has settled we set about learning about the condition so we could get to love and understand our son even more.Even though he is very non verbal and lives in his own world most of the time, he is happy. A sort of blissful ignorance. You have to arm yourself with knowledge of the condition so you can become the very best advocate for your son because most of the general public are ignorant to medical conditions that they can not physically see. Knowledge also provides you as a parent with the ammunition to fight for the best for your son in what will be a long journey. We love our son so much, his sister who is only 5 struggles to understand why her brother doesn't talk or play with her, but we tell her that we are a family and a team and now we just try to get most joy out of life as we can. Just because you've been dealt a bad hand it doesn't mean we can't play the game.

Our little boy was diagnosed 15 months ago when he was 3, he's now 4 years odl. I remember being sat in the car after his assesment with all the professionals after the diagnosis and crying my eyes out in disbelief. We have in a strange way been grieving for the little boy that we will not have and spent a long time being angry with the world. But now the dust has settled we set about learning about the condition so we could get to love and understand our son even more.Even though he is very non verbal and lives in his own world most of the time, he is happy. A sort of blissful ignorance. You have to arm yourself with knowledge of the condition so you can become the very best advocate for your son because most of the general public are ignorant to medical conditions that they can not physically see. Knowledge also provides you as a parent with the ammunition to fight for the best for your son in what will be a long journey. We love our son so much, his sister who is only 5 struggles to understand why her brother doesn't talk or play with her, but we tell her that we are a family and a team and now we just try to get most joy out of life as we can. Just because you've been dealt a bad hand it doesn't mean we can't play the game.