Adult Diagnosis, NHS

I was funded by the NHS for both first and second opinion. However the downside is there are no or very little services in the area for adults once diagnosed. And yes assessment and services are a postcode lottery. I look with envy at some authorities provision where there is so little in my own makes me wonder if I should move to the catchment area. However I think the NICE guidelines and government initiatives are becoming more autism supportive so worth looking into those. 

Hello I feel a formal diagnosis would help me come to terms with why my life has been the way it is, tonight there was an item from the national autism society posted on face book .here basically reporting an upcoming debate by mp's the debate is"Autism Diagnosis waiting times" it has a link to help find your local mp,you can then contact your local mp and ask if they could lend support to the debate.

The reality of assessment is as others have said,a postcode lottery.

Yes we all have rights under new regulations bought in but they have ways of putting adults off,some children can wait as long as seven years,an absolute outrage considering the sooner it's diagnosed the sooner a child can have extra support.No it cannot be cured but even being on here and receiving a huge amount of understanding has helped me to find strategies for coping.They say numbers for autism diagnosis is rising,It is becoming more understood in general and I myself found out about autism via social media.without that one link/story I would still be believing I was just an ill-fitting individual who was a one off mental case!

As it becomes more available for viewing then more adults see it and connect with the varied specific traits in them selfs.

As there is not much support they end up researching looking for answers and some come here, it is then that you see others who are inquisitive or suffering offer to help.quite often those who have a diagnosis talk of there struggles and outcomes.

So we are the ones doing our own councilling.we have a connection or understanding of the condition.

Push to see another doctor or request to see another go.

good luck with your quest.

Hello I feel a formal diagnosis would help me come to terms with why my life has been the way it is, tonight there was an item from the national autism society posted on face book .here basically reporting an upcoming debate by mp's the debate is"Autism Diagnosis waiting times" it has a link to help find your local mp,you can then contact your local mp and ask if they could lend support to the debate.

The reality of assessment is as others have said,a postcode lottery.

Yes we all have rights under new regulations bought in but they have ways of putting adults off,some children can wait as long as seven years,an absolute outrage considering the sooner it's diagnosed the sooner a child can have extra support.No it cannot be cured but even being on here and receiving a huge amount of understanding has helped me to find strategies for coping.They say numbers for autism diagnosis is rising,It is becoming more understood in general and I myself found out about autism via social media.without that one link/story I would still be believing I was just an ill-fitting individual who was a one off mental case!

As it becomes more available for viewing then more adults see it and connect with the varied specific traits in them selfs.

As there is not much support they end up researching looking for answers and some come here, it is then that you see others who are inquisitive or suffering offer to help.quite often those who have a diagnosis talk of there struggles and outcomes.

So we are the ones doing our own councilling.we have a connection or understanding of the condition.

Push to see another doctor or request to see another go.

good luck with your quest.

Do you think you will follow the path of getting a formal diagnosis Warrior? I think we are all learning from each other which is taking the place of what is lacking around us. It won't be the first time legislation is put through without thinking about and planning for the consequences with nothing in place to follow it through. It happens over and over again.  It looks like something is being done but in reality it is not. Let's hope change really does happen. I read something today too which was about the lack of services for adults. It suggests that as more children are diagnosed and have provision , as they grow older and become adults they will notice what services they have been used to aren't there any more. So their parents will start shouting for the provision to continue and in this way something might happen. I have read about support dogs for autism which I think is a great idea.. only at the moment in this country it is only for children. The training is expensive but I would love to have a support dog. Now it really is late . I suppose you are right about being proactive by contacting our mp's but I doubt very much whether the one here would listen.