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Adult Diagnosis, NHS

Haumea

Hi,

I've recently visited my GP about an adult diagnosis for the first time.

He pretty just told me that the NHS no longer fund this ("too expensive") and wouldn't go any further.

Is this true? Is there anything I can do?

Thanks.

Parents

  • Following the Autism Act (2009) the NHS is obliged to provide details of a pathway to assessment for adults in a given area - I contacted my local PALS citing this and was given all the information I needed to instruct my GP in making a referral.

    The cynic in me thinks that the pre-assessment and assessment process is being made increasingly difficult as a cost-cutting measure, to try and put people off and/or make the circumstances under which they will fund a full assessment increasingly narrow. When I was being referred, the gatekeeping process actually changed between them receiving my referral and processing it, so I needed to get re-referred and provide a lot more information, fill in many more forms and get input from my family, before they would agree to fund a full assessment.

Reply

  • Following the Autism Act (2009) the NHS is obliged to provide details of a pathway to assessment for adults in a given area - I contacted my local PALS citing this and was given all the information I needed to instruct my GP in making a referral.

    The cynic in me thinks that the pre-assessment and assessment process is being made increasingly difficult as a cost-cutting measure, to try and put people off and/or make the circumstances under which they will fund a full assessment increasingly narrow. When I was being referred, the gatekeeping process actually changed between them receiving my referral and processing it, so I needed to get re-referred and provide a lot more information, fill in many more forms and get input from my family, before they would agree to fund a full assessment.

Children
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