I was on one of my regular forums over last few days asking for advice on my occupational therapist as I thought she was being quite agressive/intimidating as despite knowing I have MH problems and a family member murdered 12 years ago, people kept turning round to me and saying I was whinging and lazy etc just because I said I wanted to improve my life in steps as it was almost impossible overnight.
They kept claiming I was using my autism as a excuse to say what I wanted but that wasn't true, I kept trying to explain that the reason I mentioned it was because it was part of the problem, and that I have already attempted to change my life for over a decade and kept failing so the advice (if you can call it that) I have heard so many times before and was trying to find a compromise.
I.e I said I was shocked my OT wanted me to get up 8am every day, only home cook and it must be healthy foods, not touch a computer and even not use a tv unless I have to, oh and things like I must shower and make bed as soon as I wake, make sure hair is brushed etc.
They replied why didn't I listen to the OT as she was giving me good advice and therefore I didn't want to change.
Except what kept on saying was that I was trying to reach a compromise, get up at 11am and after a month or so cut it down by 30-60 minutes
It ended up people calling me lazy as they get up around 7am every morning for work and how easy it is even if they are tired, even saying if I can't sleep all night and finally fall asleep at 7.30, get up at 8 so I keep a routine despite me saying even with about 6 hours sleep I am a danger to myself and others tripping over my own feet and walking into traffic as my coordination is off if I dont get a full nights sleep, and often when cooking I cut myself or burn myself because of same reasons.
It has ended up people calling me a slob, and just wanting attention!
The maddening thing was it was a disability subforum of a large website so I thought people there would understand.
Its a no win situation, if I say I expect overnight results I will get put down for not being realistic, if I am realistic and take that into account and say it takes time and make an effort to change I am told I am not following advice and making excuses!
And of course the usual autism (I have aspergers specifically) things that make it hard for me to do social interactions thus describe myself well so at best I can understand if they see me as contradicting myself or it seems I don't listen but situations like if I write like a single paragraph about something people judge on that and then I add information to try and explain better people get angry and say I should of wrote that first, if I write a few paragraphs (like this) I am told it doesn't make sense often as its contradictory, and more often than not they focus on like a sentence or two and ignore the rest of the post as well as take everything literally.
I for example write that I have problems with benefits and have phoned a few times get told "well you didn't care too much then" so I expand it to "I meant I phoned most days" to be told I have changed my story to make myself look better is a common sort of example to the sort of responses I can get.
I say I hardly ever eat take away but someone links to a post on another thread where I said I ate 2 takeaways at weekend (could of been only ones I had in a month) then says I make stuff up/change my story is a common sort of response too
It feels like when I go for ATO's assessment, they pick holes in what I say and focus on the parts where they can use it against me.
Another one could be I say I shower every day but someone links to a post where I didn't have a shower for two days (as a one off as lets say shower was broken, or I had the flu) sometimes these posts on threads can be months old.
Sorry just ranting a bit and wanting some feedback, I hope however its understood that seeing my life, if not living my life rather than just hear about things on paper would show things for how they truly are rather than interpretations on paper.
Im also panicking people on that forum won't be on this site as some claim to have autistic family and start an argument.
