Advice please - undiagnosed adult relative being cared for by aged parents

I am new to this forum and just taking first steps to try to resolve a very long term issue in my family.

My aging parents have been caring for my older brother (now 51) for all of his adult life. He lives with them, is supported by then financially, practically and emotionally. He has always had difficulty holding down a job, he has no social relationships at all and suffers from impulsive and aggressive tendancies. However at the heart of it is a very kind hearted, unhappy and lonely person who aspires to being successful and leading a normal life. However often has very dilluded, unrealistic and obsessive ideas about life.

My parents have affectively being doing everything they can to protect him from the outside world for years but as they are now in their 80's and in ill health I am concsious this situation can not and won't continue for ever. My other sibling and I have tired for years to get everyone to bring their heads out of the sand and deal with the situation openly and practively but there is clearly a generation gap and a lot of pride and embarassment involved on their part. My elder brother I fear is part of the generation gap that missed childhood diagnosis and support for what is clearly an autism spectrum behavioural trait (I have friends who work in this field who have also identified this in him). However no one has ever had this discussion with him and Im not sure he would ever be receptive to any form of diagnosis. He does get very aggressive so we tend to all tread on egg shells around him.

A recent very aggressive (verbal and physical) incident with him towards me has forced me into trying to address this situation now. However I am fighting an uphill battle with parents that don't honestly want to deal with it (or don't have the energy or emotional strength). However I am sure there must be many adults living in a similar situation who maybe have never been diagnosed or have benefitted from diagnosis in later life. I am sure there must be support groups or practical help for those living in similar situations but I have absolutely no idea where to start. I just want him to be happy and secure in future life when my parents are no longer around and I want to prevent them for dealing with further stress now if we can use the next few years to support him to become self sufficient and have a wider support network of people he can relate to.

Any advice on where to go to get further support of tips and advice which may help either him, my parents or myself would be so very much appreciated.

With many thanks

Parents
  • Hi sqeezelt,

    Is your Bro questioning why he isn't working at 51 ?

    Is he questioning his lack of Social relationships ? Does it bother him ?

    Impulsive & aggressive behaviour doesn't automatically mean Autism.

    What do you find about him that is deluded unrealistic & obsessive ?

    I feel diagnosis of Autism is based on knowledge of the person from the parents & the person who may have the Autism.

    Have you tried giving your Parents/Brother written information on Autism.

    Asking if they think it's a possibility.  That way it's a subtle suggestion.  See what response you get.

    There isn't too much help for high functioning Autistic Adults.  

    Plus being diagnosed has its issues.  ( Can leave you a target for abuse).

    If he has to rely on others to support him through life. That makes your parents his carer's. 

    The GP could refer him to a psychiatrist for a diagnosis.  You would have to persuade your Brother to do this to access help.  

    You couldn't make him. He would have to want this for himself.  

    Diagnosis wouldn't take his issues away. It helps identify why you have some difficulty with what.  

    You can ask Social Services for a needs assessment for your Brother, because you suspect his autistic or may have a mental health issue ?.  

    This is causing stress to your ageing parents physical or mental health.  

    They have rights as carer's & can also request an assessment at the first time.

    I hope you manage to persuade them to try to get some help.

    Star

Reply
  • Hi sqeezelt,

    Is your Bro questioning why he isn't working at 51 ?

    Is he questioning his lack of Social relationships ? Does it bother him ?

    Impulsive & aggressive behaviour doesn't automatically mean Autism.

    What do you find about him that is deluded unrealistic & obsessive ?

    I feel diagnosis of Autism is based on knowledge of the person from the parents & the person who may have the Autism.

    Have you tried giving your Parents/Brother written information on Autism.

    Asking if they think it's a possibility.  That way it's a subtle suggestion.  See what response you get.

    There isn't too much help for high functioning Autistic Adults.  

    Plus being diagnosed has its issues.  ( Can leave you a target for abuse).

    If he has to rely on others to support him through life. That makes your parents his carer's. 

    The GP could refer him to a psychiatrist for a diagnosis.  You would have to persuade your Brother to do this to access help.  

    You couldn't make him. He would have to want this for himself.  

    Diagnosis wouldn't take his issues away. It helps identify why you have some difficulty with what.  

    You can ask Social Services for a needs assessment for your Brother, because you suspect his autistic or may have a mental health issue ?.  

    This is causing stress to your ageing parents physical or mental health.  

    They have rights as carer's & can also request an assessment at the first time.

    I hope you manage to persuade them to try to get some help.

    Star

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