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Never to be diagnosed .......

emel

Hi,

I first posted here about 4 years ago when I realised that I must have AS.  Self diagnosos is a non-starter - but that doesn't mean I am wrong.

My experience as a mature adult (old person!) is that there is no help or support available on the NHS.  I did consider the option of private assessment but it is very expensive and is not recognised by the NHS.

So I live in limbo, despising who I am, and socially isolated.  Is there anyone else out there that feels like me?

But I'm getting by, I don't want to come across as totally "poor me" there are millions of people in this world far worse off.  On the plus side I am obsessively creative so I can immerse myself in projects and let the world go by.

The main reason for my post is to ask if there are any links between Aspergers and migraine.  I've suffered from migraine attacks all my adult life.  My GP told me years ago that I would grow out of them but they have become more frequent.

I'd be really grateful for any comments/advice.

Parents

  • Hi Emel,

    Further to the above, there are many potential causes for migranes and these can sometimes be difficult to diagnose (diet, over-under exercising, fluid intake etc.).

    A visit to your GP would be most helpful if you describe to them an activity that can trigger, time of day when your migranes begin (morning, afternoon, evening, after waking up, after eating etc.) any additional symptoms (e.g. flashing lights or spots in the corners of one/both eyes), if you're on any prescribed medication,and what you do to alleviate these symptoms.

    It might also be helpful to describe the other items detailed in your message (potential social isolation, poor self-image etc.), AS or not there are services designated to help.

    As a side note, you can get a second opinion about your migranes from an NHS walk-in centre (if there is one close to you, and you feel that your GP is too dismissive). You can also ask to see an alternative GP at your existing surgery (if one is available).

Reply

  • Hi Emel,

    Further to the above, there are many potential causes for migranes and these can sometimes be difficult to diagnose (diet, over-under exercising, fluid intake etc.).

    A visit to your GP would be most helpful if you describe to them an activity that can trigger, time of day when your migranes begin (morning, afternoon, evening, after waking up, after eating etc.) any additional symptoms (e.g. flashing lights or spots in the corners of one/both eyes), if you're on any prescribed medication,and what you do to alleviate these symptoms.

    It might also be helpful to describe the other items detailed in your message (potential social isolation, poor self-image etc.), AS or not there are services designated to help.

    As a side note, you can get a second opinion about your migranes from an NHS walk-in centre (if there is one close to you, and you feel that your GP is too dismissive). You can also ask to see an alternative GP at your existing surgery (if one is available).

Children
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