People relativising AS and telling you that you seem 'normal' to them.

I hate it with a passion when people say to me, often randomly, 'I don't think anyone would have thought that you struggle with asperger's, you seem so normal', and then they say that they themselves struggled to fit in at school for some reason and does that mean they therefore have aspergers? It is like they are questioning the diagnosis by implying I cannot possibly have AS because I am so chatty and extrovert!. They do not realise how their comments make me feel sick inside, the anguish and stess the comments make me feel, particularly when the comments come from people who should know better. My regular support worker understands me and would never relativise my AS, but a support worker who has only recently started working with Autistic adults and who does not have much experience in this field, recently came out with these comments and left me feeling hurt and upset, although in other respects I get on with him. I feel like I am a fake, that my identity is being questioned, and it makes me feel unhappy, like I will be a perpetual outsider, not fitting in anywhere. I don't wish to be defined by asperger's, but it is nevertheless such a big part of my identity and I am so proud of my achievements and successes with regard to fighting back against my anxiety and the negative side of my AS and how my experiences have shaped me as a person. I always feel like I have to justify myself and it makes me feel so tense and upset. Anyway, I felt like replying, what am I supposed to look like as a person with AS? Am I supposed to hardly talk, to be rude and non-compliant or highly distracted?.

Has anyone else with high-fuunctioning AS experienced similar issues? I do feel so unhappy at the moment, but maybe I am being too analytical and taking things too far.

Parents
  • I do not feel particularly comfortable with this support worker, and I have mentioned this to my regular support worker, who is my key-worker and who I see the most and get on with really well. I only see the problematic support worker every now and again, and I have experienced no problems with any other support worker. The problem is that he often jokes and is sarcastic, and I do not get sarcasm or subtle jokes, so I feel very uncomfortable. He also sometimes touches my arm, which I can't stand because I hate unexpected soft touch. I have told him this, but he still sometimes touches or prods my arm, and he also helps put my backpack on when I can do this by myself, and again I don't like people touching me without my permission. He should know not to do this as he works for an autism charity.

Reply
  • I do not feel particularly comfortable with this support worker, and I have mentioned this to my regular support worker, who is my key-worker and who I see the most and get on with really well. I only see the problematic support worker every now and again, and I have experienced no problems with any other support worker. The problem is that he often jokes and is sarcastic, and I do not get sarcasm or subtle jokes, so I feel very uncomfortable. He also sometimes touches my arm, which I can't stand because I hate unexpected soft touch. I have told him this, but he still sometimes touches or prods my arm, and he also helps put my backpack on when I can do this by myself, and again I don't like people touching me without my permission. He should know not to do this as he works for an autism charity.

Children
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