I don't really know what i'm doing on here...

Hi, I'm a 26 year old male who was diagnosed with Asperger's Syndrome in December last year.

I feel so confused and i don't know what to do or who to turn to or even the right questions to ask.

My diagnosis which took just under a year altogether, from my GP telling me there's nothing wrong with me, to me speaking to someone from the primary care of mental health team during an appointment about having counselling, who then sorted out an appointment for (I think) an initial assesment and then a 2 hour assesment recieving the diagnosis.

After my diagnosis I guess I put it to one side and didnt really tell anyone and I went about things the way I did before the diagnosis (work, home etc.). In the february I had a follow up appointment with the Doctor and Occupational health specialist that I saw when I was diagnosed, just to ask any questions etc. After this I went down hill and I have been signed off work since the end of Feb as my thoughts were very dark and I was incedibly confused about myself.

I am still very confused and I feel very lost, no-one seems to be able to help me and it's incredibly disheartening just how little people know about ASD. I think I'm expecting too much from the world, to be given some sort of instruction manuel on how to be me, the REAL me, not the me that I have lived the most of my life trying to be, the guy who is a bit strange, a little odd and doesn't quite fit in, but if I try hard enough that'll all change. I know that is not the case now, I know I'm not neurotypical, but i guess i've just conditioned myself so much over the years that I don't know who to be or how to be anymore.

someone from social services (I think) is coming tommorow but I'm not expecting anything good to come from the meeting.

I developed a negative outlook on life a while ago, that way I can either be right, or pleasently surprised.

I...don't even know if this essay i've written is just a waste of time, for me and whoever (if anyone) decides to read this. Pretty much anything would be helpful. keeping my mind off it has brought me down, yet thinking about it gets me no where.

I apologise for any spelling mistakes I may have made and I know I said that the GP said there was nothing "wrong" with me, that is not to say that I think there IS something wrong with me or anyone else on the Autism Spectrum because I don't believe that at all! I just didn't know how else to put it... If someone could suggest a different way to put it I would be extremely greatfull, especially as I find it hard to talk to people about it anyway and I wouldn't want to say something that makes people who don't understand have the wrong infomation because of me. I also apologise for this being so long, I didn't set out for it to be this long, and also for any bad punctuation, although I am what I consider to be good at English, it has never been something I have found easy.

Sorry.

Parents
  • I am so sorry to hear that Random and yes in a way your reply has helped in some ways but not in others as I hope you understand when I say that now I know I'm not the only one.

    I also have Asthma, Epilepsy, Depression and Anxiety all of which I am on medication for even though Anti-Depressants have an effect on my Anti-Epileptic drugs and I also take Vitamin-D, which is prescribed, as 2 of the medications i take for my Epilepsy can cause Osteoporosis. It's all fun (sarcastic)

    The reason I have been off work for such a long time is because I have been going to see a different GP to my own and I have tried to explain my thoughts and feeling and the fact that I broke down in work and I am currently "off sick". I have had 3 sick notes so far and I will be returning to see him in a few days as that's when my current one runs out.

    Maybe you should contact social services? I'm not really sure how that all works, all I know is that my Mum kicks butt, because we hadn't heard from them she got the letter/report that we recieved after my diagnosis and she phoned up and asked to speak to either the Dr or the Occupational health specialist that diagnosed me. The Oc Health lady phoned back and she contacted whoever and let my mum know that we would hear from them "within the next 2 weeks" and we did.

    If like me you're not good at that sort of thing (phones, I can make a Doctors appointment but I cant do much longer than that as I seem to get confused and get walked over), then I hope you know someone who could contact them on your behalf.

Reply
  • I am so sorry to hear that Random and yes in a way your reply has helped in some ways but not in others as I hope you understand when I say that now I know I'm not the only one.

    I also have Asthma, Epilepsy, Depression and Anxiety all of which I am on medication for even though Anti-Depressants have an effect on my Anti-Epileptic drugs and I also take Vitamin-D, which is prescribed, as 2 of the medications i take for my Epilepsy can cause Osteoporosis. It's all fun (sarcastic)

    The reason I have been off work for such a long time is because I have been going to see a different GP to my own and I have tried to explain my thoughts and feeling and the fact that I broke down in work and I am currently "off sick". I have had 3 sick notes so far and I will be returning to see him in a few days as that's when my current one runs out.

    Maybe you should contact social services? I'm not really sure how that all works, all I know is that my Mum kicks butt, because we hadn't heard from them she got the letter/report that we recieved after my diagnosis and she phoned up and asked to speak to either the Dr or the Occupational health specialist that diagnosed me. The Oc Health lady phoned back and she contacted whoever and let my mum know that we would hear from them "within the next 2 weeks" and we did.

    If like me you're not good at that sort of thing (phones, I can make a Doctors appointment but I cant do much longer than that as I seem to get confused and get walked over), then I hope you know someone who could contact them on your behalf.

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