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Get involved in the Adult Autism Spectrum Cohort project

explorer

The Adult Autism Spectrum Cohort project is about engaging autistic adults and our relatives in research. It is a lifespan project, so they are interested in people participating in surveys over a long period, to see how our lives change as we get older. The NAS is one of the National Partners of the project.

At the moment, they would like more relatives and partners of autistic adults to join, to talk about how being close to an autistic adult has affected your own life. 

They are also looking for more autistic adults to join. Over 300 have already started and the feedback so far is good. They update results onto the website. 

You can also follow the project on Twitter at @uk_asc

Parents

  • Hmm, yes, that does look more interesting and relevant to autistic people themselves than most requests.

    I do like the idea of helping with research, and have had my eye out - but so often it seems they are obsessed with the pathology of autism rather than researching what helps us in day-to-day life.  Might just give this one a go, it certainly looks a lot more like the kind of research I was hoping to see.

Reply

  • Hmm, yes, that does look more interesting and relevant to autistic people themselves than most requests.

    I do like the idea of helping with research, and have had my eye out - but so often it seems they are obsessed with the pathology of autism rather than researching what helps us in day-to-day life.  Might just give this one a go, it certainly looks a lot more like the kind of research I was hoping to see.

Children
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