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Really struggling

Sakura

Sorry for the ramble in advance. I've felt desperate for quite a while now with the way my life is now. 

I got a diagnosis of Asperger's while I was still at school and I was quite well supported until I was 18. After that I feel like I was abandoned. (ASD doesn't disappear when you turn 18!)

Since then things have generally been awful. I've had a few admissions to psych hospitals, stayed in bad supported living for a while and ended up having to move out to rented accommodation. 

I feel so completely isolated and unsupported. There's nobody I could call my friend any more and my family are no help (just another source of stress). I have a social worker who is incredibly unhelpful and I'm not sure if she's aware I exist. When I have seen her I end up feeling worse afterwards. I have a psychiatrist who wants to discharge me soon and sees me for about 10 minutes every three or four months. I started a different antidepressant a few weeks ago and aside from the physical side effects (including feeling like my heart's beating really fast sometimes) I started feeling intensely suicidal for a while. That seems to have mostly worn off though. 

Everything is so, so stressful. My partner's had a benefits application for over a year now and I have to be included in the application. We're also on a council housing list but meanwhile staying in a rental with a terrible landlord and loads of problems. It looks like we won't get anywhere to stay before the tenancy is up and I can't think about having to move to another awful rental place without feeling panic and dread. I find it difficult to leave the house. And the house is a tip. 

I can't see much hope in the future. I don't think I can go on like this with no help, no support, massive financial worry and having to move from one terrible flat to the next.

I've tried to phone different charities etc. for advice but that in itself is incredibly difficult. There's a local charity here that could offer some kind of support but I'm on a waiting list.

I really don't know what to do and I feel like I might break soon.

Does anyone have any suggestions? 

Parents

  • Im very sory you are suffering the way you are. Life with ASD can be a handful.

    Here's a few things to try:

    1)find out if there are any disability advice centres near you that can effectively sign post you to ressources That might be helpful. As from what you describe people are nit effectively signposting you.

    2)Goto social services and find out if you are eligible for financial support for courses to help learn skills to deal with ASD and other needed skills that would make life easier for you. Or find out what you need ti be eligible for support.

    3)Find out about any local NAS centres near you that can provide informed advice on what you can do to pursue help etc. eg what funding you can access etc

    4)if you find these things difficult to do for whatever reason look into getting an advocate who can chase these things for you.

    me (mostly my mum and support) doing these things has resulted in me being in a pretty good situation in terms of good supported accomodation and financially. 

    There is help out there...

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  • Im very sory you are suffering the way you are. Life with ASD can be a handful.

    Here's a few things to try:

    1)find out if there are any disability advice centres near you that can effectively sign post you to ressources That might be helpful. As from what you describe people are nit effectively signposting you.

    2)Goto social services and find out if you are eligible for financial support for courses to help learn skills to deal with ASD and other needed skills that would make life easier for you. Or find out what you need ti be eligible for support.

    3)Find out about any local NAS centres near you that can provide informed advice on what you can do to pursue help etc. eg what funding you can access etc

    4)if you find these things difficult to do for whatever reason look into getting an advocate who can chase these things for you.

    me (mostly my mum and support) doing these things has resulted in me being in a pretty good situation in terms of good supported accomodation and financially. 

    There is help out there...

Children
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