DLA to PIP ATOS Assessment - Experiences?

Hi!

My brother is moving from DLA Higher Care Lower Mobility to PIP. Complied the forms and gave lots of information about the difficulties he has faced and sent in supporting evidence.

He has been called for an interview at an ATOS Healthcare assessment centre. This will be a disaster. He likely will not even get out of the car, would throw up, be unpredictable and lord knows how he will answer any questions. How do they deal with refusals to get out of the car or somone who will say nothing or say "I am bored now let's get out of here".

I would welcome any tales of experiences good and bad. What do they ask and so forth and what do you do if the person can't speak.

Parents
  • When under stress he can't speak or not well. Yes he has cards for this. One says "get me out of here". He also has a Baoding ball as a stress reliever.

    He is not "thick" or unintelligent. Can use a computer with the accessibiity aids he has for it.

    I just keep seeing horror stories where people have to fight to the end and dismissed as liars by the DWP and have to go to court.

    Part of me even thinks is it worth going through all this for the money. We had help with the forms from the local autism charity. We don't get support - like many expected to "manage". How do you prove he needs prompting to dress and take a bath? Do we just not do that and let him humiliate himself with looking a mess?

    When he greets them he will go "Hey" or "Hi" and do the Makaton action. They won't even know that's what it is. I keep seeing they are just physios - what experience do they have of the complexities of autism?

    This is for PIP not ESA

Reply
  • When under stress he can't speak or not well. Yes he has cards for this. One says "get me out of here". He also has a Baoding ball as a stress reliever.

    He is not "thick" or unintelligent. Can use a computer with the accessibiity aids he has for it.

    I just keep seeing horror stories where people have to fight to the end and dismissed as liars by the DWP and have to go to court.

    Part of me even thinks is it worth going through all this for the money. We had help with the forms from the local autism charity. We don't get support - like many expected to "manage". How do you prove he needs prompting to dress and take a bath? Do we just not do that and let him humiliate himself with looking a mess?

    When he greets them he will go "Hey" or "Hi" and do the Makaton action. They won't even know that's what it is. I keep seeing they are just physios - what experience do they have of the complexities of autism?

    This is for PIP not ESA

Children
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