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What support is there for adults with Asperger's?

Guineapigged

I was recently told I may have Asperger's and am awaiting an assessment (Dr said he would refer me to Sheffield?)

In light of this I am going to be discharged from the CMHT within the next 6 months. This means I will no longer have access to services such as respite. I asked my keyworker if there was another service they would pass me onto but he didn't know. It doesn't seem likely.

Are there any official services for Asperger's or do they basically just leave you to it? I'm feeling a bit abandoned and bewildered.

Parents

  • The Autism Act doesn't seem to have much clout though. Since NAS asked us to chase up the person responsible for adult social services in our local authorities, I've chased up several times to see what is happening.

    On the Council's website the "Autistic Spectrum Team" only covers children's services, and the age range stops at 19. There's nothing at all about adults.

    When I pursue the matter, I get a "we're looking into it" email, and several weeks later someone comes back to me to say it is covered under Adult Social Care, but nothing specific has been put on the web yet.

    And still nothing whatsoever about adult autism/asperger's syndrome appears anywhere on their website.

    Until the Autism Act is more to be feared for its bite than its (rather feeble) bark, there's going to be little change, I fear.

Reply

  • The Autism Act doesn't seem to have much clout though. Since NAS asked us to chase up the person responsible for adult social services in our local authorities, I've chased up several times to see what is happening.

    On the Council's website the "Autistic Spectrum Team" only covers children's services, and the age range stops at 19. There's nothing at all about adults.

    When I pursue the matter, I get a "we're looking into it" email, and several weeks later someone comes back to me to say it is covered under Adult Social Care, but nothing specific has been put on the web yet.

    And still nothing whatsoever about adult autism/asperger's syndrome appears anywhere on their website.

    Until the Autism Act is more to be feared for its bite than its (rather feeble) bark, there's going to be little change, I fear.

Children
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