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What support is there for adults with Asperger's?

Guineapigged

I was recently told I may have Asperger's and am awaiting an assessment (Dr said he would refer me to Sheffield?)

In light of this I am going to be discharged from the CMHT within the next 6 months. This means I will no longer have access to services such as respite. I asked my keyworker if there was another service they would pass me onto but he didn't know. It doesn't seem likely.

Are there any official services for Asperger's or do they basically just leave you to it? I'm feeling a bit abandoned and bewildered.

Parents

  • Hope said:

    I am surprised by this. Before I got diagnosed I was receiving CBT for OCD and anxiety. The CBT was not working because it did not address my underlying AS. Consequently, when I got referred to the NHS Autism team, I stopped receiving CBT, but in the interim I was given a mental health support worker who I saw for an hour a week in order to help me cope while I was waiting for an assessment. The mental health team kept me on their register, which I am still on because I am receiving ongoing support from the CMHT in the form of social worker appointments and psychiatric check-ups, even though my main support is now provided through the local Autistic Society.

    I would question your CMHT on this because they should provide you with some support while you are waiting for an assessment. Do you have any mental health problems, like anxiety or depression?

    Hi, thank you for the response.

    I have been with the early intervention psychosis team for 2 years now but have never shown signs of psychosis and my official diagnosis is dysthymia.

    Since it's now suspected Asperger's rather than a mental illness, my keyworker recommended I come off my medication and wind down the level of support. I got them impression of "you're not ill after all - it's just Asperger's" and therefore I don't need to be involved with medical services like a CMHT anymore.

    I feel like everybody expects me to be happy because I'm "cured" now - or, rather, I'm "cleared" of any serious mental illness like schizophrenia. But in reality I'm still having all the problems I was 2 years ago, only now I don't have the "right" diagnosis in order to access services that have been useful to me like respite, crisis team etc.

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  • Hope said:

    I am surprised by this. Before I got diagnosed I was receiving CBT for OCD and anxiety. The CBT was not working because it did not address my underlying AS. Consequently, when I got referred to the NHS Autism team, I stopped receiving CBT, but in the interim I was given a mental health support worker who I saw for an hour a week in order to help me cope while I was waiting for an assessment. The mental health team kept me on their register, which I am still on because I am receiving ongoing support from the CMHT in the form of social worker appointments and psychiatric check-ups, even though my main support is now provided through the local Autistic Society.

    I would question your CMHT on this because they should provide you with some support while you are waiting for an assessment. Do you have any mental health problems, like anxiety or depression?

    Hi, thank you for the response.

    I have been with the early intervention psychosis team for 2 years now but have never shown signs of psychosis and my official diagnosis is dysthymia.

    Since it's now suspected Asperger's rather than a mental illness, my keyworker recommended I come off my medication and wind down the level of support. I got them impression of "you're not ill after all - it's just Asperger's" and therefore I don't need to be involved with medical services like a CMHT anymore.

    I feel like everybody expects me to be happy because I'm "cured" now - or, rather, I'm "cleared" of any serious mental illness like schizophrenia. But in reality I'm still having all the problems I was 2 years ago, only now I don't have the "right" diagnosis in order to access services that have been useful to me like respite, crisis team etc.

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