Being messed around by PIP

Hello all,

So I have asperges and high functioning autism. I live my world online, other than exercising to keep myself healthy. I don't have any friends and I don't go out because I get social anxiety. I can't work at a job for the same reason plus I don't get on with "normal" people. I am articulate but I worry.

I applied for PIP and got referred to a face2face. In this she "seemed" to agree with me, certainly wrote a lot down, asked me wierd questions like spelling words backwards (I got it wrong :/) and some basic maths. She noted I was very articulate.... seems this is a problem?

Anyway I got the letter back and I have...0 points for everything.

I rang them up and asked for a re-assesment, someone phoned me but I was listening to music on headphones, they left a msg saying they would phone back, and never did.

Today I got the same letter I got before but from a different person. No points. They even say on the letter that they recognise I have a disability but they have come to the decision that I qualify for nothing.

What do I do now? I have a doctors letter and 6 months of sick notes (for ESA). I want to appeal the PIP but considering they promise to ring me, don't and just "make their decision" it seems pointless.

It worries me that an american company (ATOS) handles British government claims...surely the more people they deny the more money they make?

Thank You

  • I am dreading this myself, My autism team helped to fill in the form. I had spent over 6 hours going through the questions and writing notes, the autism team spent a furhter 3 hours with me to fill the form. The lady who filled the form in said they regularly had to appeal, and were frustrated that the people doing the face to face interviews were not particularly aware of asd and how it can affect someone.

  • Contact your local Disability information and Advice line and hopefully they will take you through the steps in how to appeal because even with PIPS you can appeal.

    Are you talking about PIP or ESA? either way DIAL as they are known by, will hopefully help. you are not obliged to use them. But they can come with you to assessments. Anyone can come with you to the assessment - choose wisely.

    If you are not sure about Apeals ring DIAL anyway and start the whole process again with them.  They are not necessarily the best at judging Asperger's/Autism. But they can take you through the whole process.

    Hope this helps