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NAS does it again

electra

I am applying for help through Access to Work. They have agreed that I can have a workplace assessment from the NAS.

So far so good, but the NAS leaflet I am supposed to give my employer talks about autism spectrum disorder. In huge letters. I'm autistic, I don't have a disorder. Even the government doesn't use the term in its Autism Strategy and our council doesn't use it either.

If I give this information to my employer it will further downgrade my abilties in their eyes. I will feel demeaned and compromised. I know the assessment will be done by someone who regards me as having a disorder.

 NAS, please stop doing this to us

Parents

  • So true. The professionals mainly see people attending their clinics. They don't tend to see people on the spectrum who haven't needed recourse to their clinics - but that includes a wide cross-section of people and severities, not simply those coping well.

    One big problem therefore is that the professionals have most knowledge of people with many comorbid conditions who are presenting a psychosis, and who may provide confused messages. Some behaviours attributed to autism, may just be unrelated traits predominant in the clinical populations.

    Another bias arises with trial volunteers. I'll probably be rebuked for being judgemental or for generalisation, but people who volunteer to be tested in various ways for research, whether that's interviews, or being set up with electrodes or sessions in a scanner, are already in the system, as it were, through having needed interventions. They will also tend to be London based, where there is a high enough population of such people.

    Most managing individuals will not get involved in trials. Hence all the more reason for needing a more representative sample population than 10% of survey adults with autism.

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  • So true. The professionals mainly see people attending their clinics. They don't tend to see people on the spectrum who haven't needed recourse to their clinics - but that includes a wide cross-section of people and severities, not simply those coping well.

    One big problem therefore is that the professionals have most knowledge of people with many comorbid conditions who are presenting a psychosis, and who may provide confused messages. Some behaviours attributed to autism, may just be unrelated traits predominant in the clinical populations.

    Another bias arises with trial volunteers. I'll probably be rebuked for being judgemental or for generalisation, but people who volunteer to be tested in various ways for research, whether that's interviews, or being set up with electrodes or sessions in a scanner, are already in the system, as it were, through having needed interventions. They will also tend to be London based, where there is a high enough population of such people.

    Most managing individuals will not get involved in trials. Hence all the more reason for needing a more representative sample population than 10% of survey adults with autism.

Children
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