A disability network I'm on has publicised four surveys by Leonard Cheshire Disability that might be of interest. I haven't tried cutting and pasting the URLs as the network newsletter is often unreliable at reproducing them, but they should be on the Leonard Cheshire website.
One is about the experiences of people on DLA applying for PIP. The second, for those that have moved to PIP, is whether they have lost out. The third is about people's experiences trying to get ESA. The fourth is about housing benefit and the influence of bedroom tax.
Sounds like a way of making known difficulties faced by people on the spectrum. Maybe also it is time for some more discussions on here.