Damned if you do.......damned if you don't

Hi,

As someone who has been recently diagnosed with Asperger's Syndrome and who has subsequently recieved answers to a great many questions as a result I would like to know how other people with AS status cope long term. I am finding that whilst the diagnosis has been welcome very little in life has changed for me and I feel as isolated and misunderstood as I have always felt. My partner who tries to understand is often the reason for my anxiety, she may be the centre of my universe her apparent intolerence is often a source of stress for me.

I find if I withdraw from conversations my wife complains and when I try and often fail to engage in conversation I am accused of being rude or insensitive. I find my partners inconsistent approach to the rules of the house and the way she expects me to just cope with it is provong very taxing. It is very difficult as she is very understanding in so many ways but I guess her resentment of my condition runs deep.

My preferred approach is to withdraw from conversation completley, I can happily go hours even days without talking to anyone so pitching in to conversations often fills me with dread. I usually say something deemed inappropriate or more than likely insensitive. 

Does anyone feel that trying to esatblish a identity for yourself as someone with autism is important. I do not want to let my AS limit or define who I am but believe firmly that I should respect it and acknowledge it is a big part of who I am and as such should be recognised. I only wish others would recognise it too.

Thank you

Parents
  • Inconsistency is a severe problem for me. So much confusion has happened over people acting differently towards me from one day to the next. It does my head in. I do agree that there needs to be more awareness that ASD is not a mental health issue and there should certainly be more awareness of it given to NTs. To the original poster, its always hard coping with being diagnosed, and especially so at an adult age. I was diagnosed at eight years of age but I've always struggled with communicating with others and trying to be social. It's never easy but I think with time it can improve. I'm certainly at least more socially active or aware than I was five years ago. Maybe you should sit down with your partner/family and have a frank discussion from the heart? In my experience, that can be very beneficial

Reply
  • Inconsistency is a severe problem for me. So much confusion has happened over people acting differently towards me from one day to the next. It does my head in. I do agree that there needs to be more awareness that ASD is not a mental health issue and there should certainly be more awareness of it given to NTs. To the original poster, its always hard coping with being diagnosed, and especially so at an adult age. I was diagnosed at eight years of age but I've always struggled with communicating with others and trying to be social. It's never easy but I think with time it can improve. I'm certainly at least more socially active or aware than I was five years ago. Maybe you should sit down with your partner/family and have a frank discussion from the heart? In my experience, that can be very beneficial

Children
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