Recently Diagnosed

I am 41 years old and at long last my life is making a little more sense than usual. I am lucky enough to be seeing a counsellor who also happens to be  a consultant clinical psychologist and she has given me perhaps the best Christmas present I will ever recieve, a diagnosis and a definitive reason why this world of ours makes so little sense to me. 

Through research and a rather high score on the AQ test I have known for some time that all was not right with me but through misdiagnosis due an abusive childhood autism was never considered despite a life in and out of social care and counselling. 

However I now have the most precious of all things 'hope'. I have read many accounts here and elsewhere and I am encouraged that many things that I do are also done by others. 

Here are some of my traits - 

  • Difficulty with handwriting (poor handwriting, having to write in capitals) and holding a pen or pencil in my own way and not like the normal way most people hold a pencil).
  • Inability to learn how to swim as a child and teenager (I still cannot swim).
  • Inability to catch objects thrown at me, such as a tennis ball, set of keys, and so forth. 
  • I get easily stressed, upset, anxious, etc, when faced with stressful situations.
  • Never looking at the person I am speaking to, such as looking left or right or with head bowed. Even walking with head bowed.
  • Having an intense interest in hobbies and collecting DVD's and films. Huge fan of all things Top Gear, limited interest in pop music or popular culture but very intense interest in the few bands and solo artists that I am interested in, , intense interest in reading about certain subjects rather than general reading, only in audio book form as my concentration wavers. I have little or no interest in fiction. 
  • In person, very quiet, stand-offish and reserved, not talking much, keeping to myself; even in the company of some relations and friends, sometimes.
  • Communicative on social networking sites, Internet forums, email, etc. 
  • Difficulty with social interaction when in the company of complete strangers. I am very un blokish so I have never mixed with other men very well, in fact they are a mystery to me.
  • Inability to cope with change and getting very upset and stressed and anxious in such circumstances. I have a constant need to control my environment.
  • Disliking physical contact when not wanted or asked for. 
  • In addition to disliking certain physical contact, I also have difficulty hugging people; I tend to hug people gingerly and nervously. 
  • Unable to show empathy and unable to empathise with others, even though I know what it is to show empathy.  
  • Possible hypersensitivity to smell or at least some smells (I hate the chlorine smell of bleach, for one example).  I have little resistance to noise. 

    In addition to this my diet is terrible because I cannot cope with the sensation of vegetables crunching between my teeth and their texture and smell. I cannot have my hair cut so I have for 20+ years cut it myself with clippers although my wife does it for me now. Yes I am married for the third time but I am hoping this will last as I am coming to terms with who I am now.

    I welcome question and comments and look forward to conversing with people like myself.

    Thanks

    James


Parents
  • I agree, True Colors, something seems to happen to those who weren't picked up when younger.

    It would be useful to have more understanding of those whose AS appears mild in later life through having coping strategies and ways of passing off as NT. Is this because they are "mild" or because circumstances have had an ameliorating effect on the AS.

    There is a danger of dividing people having "real" aspergers because they are not coping and having secondary problems such as depression, and people who are coping and managing their lives. I emphasise that many people with AS have comorbid and secondary conditions that greatly limit their lives as well as having more marked symptoms related to AS diagnostioc traits. But like for like, similar levels of underlying limitations, research is urgently needed to understand what might enable some people to cope better.

    Those nearer my generation "had to keep their heads down" (whether on their parents' part or their own), and had to learn to cope on their own (given symptoms were often treated by GPs as immaturity or inadequacy if not marked enough for worse consequences).

    Is that conditioned survival significant?

Reply
  • I agree, True Colors, something seems to happen to those who weren't picked up when younger.

    It would be useful to have more understanding of those whose AS appears mild in later life through having coping strategies and ways of passing off as NT. Is this because they are "mild" or because circumstances have had an ameliorating effect on the AS.

    There is a danger of dividing people having "real" aspergers because they are not coping and having secondary problems such as depression, and people who are coping and managing their lives. I emphasise that many people with AS have comorbid and secondary conditions that greatly limit their lives as well as having more marked symptoms related to AS diagnostioc traits. But like for like, similar levels of underlying limitations, research is urgently needed to understand what might enable some people to cope better.

    Those nearer my generation "had to keep their heads down" (whether on their parents' part or their own), and had to learn to cope on their own (given symptoms were often treated by GPs as immaturity or inadequacy if not marked enough for worse consequences).

    Is that conditioned survival significant?

Children
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