I really need some help. My son is 6. He's gee soiling for 6 months or more and is undergoing diagnosis for ASD. We have tried EVERYTHING. Paediatrician/ continence nurse/ charts/ social stories... Bribery... But really nothing seems to work in terms of reduction of the soiling. ive become obsessed with him poo habits...sitting/constipation/ timings all trying to help establish a routine etc. or even just going to the toilet, in the toilet. When we did resolve the poo in the pants (2 days accident free but heavily reminded/ positively reinforced/ high praise & reward ) wee accidents occurred instead. It's soul destroying. I'm so worried he is going to get teased at school soon. Conversely : he doesn't care, but does get horribly embarrassed if others notice. The paediatrician is great. Continence nurse is hands on & supportive but nothing is resolving the issue. I've tried doing nothing to see if that helps but it makes no difference. My so doesn't have a learning difficulty, is very affectionate and has good close friendships. He doesn't fit the 'typical' ASD mould. ive just resigned from 10 years hard work to get to where I want to be professionally: I'm needed more at home. But I just can't find the right tools to help him. (He's a happy soul, doesn't know why he does it, and apologises profusely.) I worry about his self esteem. I want him to toilet himself because he wants to: not because of my negative reaction. I make it sound likes he's punished...he certainly isn't. I try to be very laid back about it but that's difficult when you've got a seven point daily chart to fill in!!! He knows what he needs to do and therefore recognises when he hadn't achieved his goals. What to do? I've had the 'reduced sensation' of the sphincter muscle due yo the anxiety etc etc of constipation discussion. Thing is he has movicol every day so really can't be.nroy d and round I circles we go......any ideas? Guidance? Research you know of will ve massively appreciated. x
