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Medical response to an autistic persons pain

outraged

I have recently been suffering dental problems. Because I have difficulty with waiting rooms and medical facilities in general, I was attempting self treatment untill the pain exceeded my pain tolerance threshold. I took every pain pill I could find to no effect. This happened in the early hours of the morning shortly before the new year. I was alternating between running up and down my flat punching walls and siting on the floor crying. I walked five miles across the city to A+E to seek help. Before I could enter the hospital, I struggled for maybe twenty minutes to achieve a calm demeanour. I waited there for three hours and all the help I recieved was a Ibuprofen which I had already taken to a near overdose and found ineffective. I believe I had a genuine clinical need for serious pain relief, but was unable to persuade the staff to take the severity of the pain seriously or to elict empathy for said pain and as a result recieved profoundly insufficient treatment.

Has anyone else had a similar experience?

Are there in existence or planning guidelines for accurately assessing an Autistic persons pain?

Parents

  • I do worry that I let my own "manageable end" Aspergers rules what I say on here. I echo what DaisyGirl says about judging issues when your only insight is at the manageable/ "mild" end.

    It is also important to point out that being able to post at all on here implies a degree of moderation in the impact of autism. There are a lot of people out there who cannot post on their own account.

    I admit I probably don't manage it but I do try NOT to look though "mild" end tinted glasses. But I retired from teaching and disability support in HE four years ago and am losing my touch.

    I do do a lot of voluntary disability access assessment. Sometimes I'v got someone with me with a wheelchair, but that isn't always possible. So I have to think wheelchair, even though I'm able bodied, and think in terms of an imaginary envelope around me, at all the known constraints in lifts, toilets, turning circles, surface types.

    So it is important to try to imagine the situation if you really were in pain in relation to your surroundings, and really had difficulty understanding people.

    Also we are all very different, and one person's experience of autism/aspergers isn't enough.

Reply

  • I do worry that I let my own "manageable end" Aspergers rules what I say on here. I echo what DaisyGirl says about judging issues when your only insight is at the manageable/ "mild" end.

    It is also important to point out that being able to post at all on here implies a degree of moderation in the impact of autism. There are a lot of people out there who cannot post on their own account.

    I admit I probably don't manage it but I do try NOT to look though "mild" end tinted glasses. But I retired from teaching and disability support in HE four years ago and am losing my touch.

    I do do a lot of voluntary disability access assessment. Sometimes I'v got someone with me with a wheelchair, but that isn't always possible. So I have to think wheelchair, even though I'm able bodied, and think in terms of an imaginary envelope around me, at all the known constraints in lifts, toilets, turning circles, surface types.

    So it is important to try to imagine the situation if you really were in pain in relation to your surroundings, and really had difficulty understanding people.

    Also we are all very different, and one person's experience of autism/aspergers isn't enough.

Children
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