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Medical response to an autistic persons pain

outraged

I have recently been suffering dental problems. Because I have difficulty with waiting rooms and medical facilities in general, I was attempting self treatment untill the pain exceeded my pain tolerance threshold. I took every pain pill I could find to no effect. This happened in the early hours of the morning shortly before the new year. I was alternating between running up and down my flat punching walls and siting on the floor crying. I walked five miles across the city to A+E to seek help. Before I could enter the hospital, I struggled for maybe twenty minutes to achieve a calm demeanour. I waited there for three hours and all the help I recieved was a Ibuprofen which I had already taken to a near overdose and found ineffective. I believe I had a genuine clinical need for serious pain relief, but was unable to persuade the staff to take the severity of the pain seriously or to elict empathy for said pain and as a result recieved profoundly insufficient treatment.

Has anyone else had a similar experience?

Are there in existence or planning guidelines for accurately assessing an Autistic persons pain?

Parents

  • Hi outraged. Appologies if I appeared insensitive to your suffering. I was most concerned by the first sentence about fear of waiting rooms and medical facilities and self treatment. I thought the pain aspect was already covered by the previous comment.

    I have experienced the severe pain of absesses, on more than one occasion. It would be irresponsible of me to mention what I did to cope with the pain, on this site.

    I will add, that when I have dental treatment, the local anasthetic only partially works. It is very slow acting and I frequently need top up injections. The numbing usually takes full effect after I get home.  My dentist is usually aware that he is hurting me because I flinch when he hits a sore spot. He regularly appologises for hurting me before I leave. Lovely chap. My son has this problem also. He has found a sympathetic dentist, who dripped the anathsetic into the tooth during root canal treatment. Most dentists appear unaware that the injections don't always take effect straight away. I hope this does not put you off further, but I think that a small amount of pain during treatment, is better than the severe pain of neglect.

Reply

  • Hi outraged. Appologies if I appeared insensitive to your suffering. I was most concerned by the first sentence about fear of waiting rooms and medical facilities and self treatment. I thought the pain aspect was already covered by the previous comment.

    I have experienced the severe pain of absesses, on more than one occasion. It would be irresponsible of me to mention what I did to cope with the pain, on this site.

    I will add, that when I have dental treatment, the local anasthetic only partially works. It is very slow acting and I frequently need top up injections. The numbing usually takes full effect after I get home.  My dentist is usually aware that he is hurting me because I flinch when he hits a sore spot. He regularly appologises for hurting me before I leave. Lovely chap. My son has this problem also. He has found a sympathetic dentist, who dripped the anathsetic into the tooth during root canal treatment. Most dentists appear unaware that the injections don't always take effect straight away. I hope this does not put you off further, but I think that a small amount of pain during treatment, is better than the severe pain of neglect.

Children
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