Why are the politicians and media such ***** to people with Autism and ADHD?

Genuine question after seeing Kemi Badenoch's vile rant yesterday. Richard Tice has mocked neurodivergent children for wearing ear defenders in class before and Nigel Farage things you can get an autism diagnosis over a Zoom call from your GP

Barely a day goes by without the media making up some new nonsense story to attack Autistic or ADHD people

Is it just our country that's particulary cruel or is it the whole world? These people manage to combine a special mix of nastiness and staggering ignorance every time they open their mouths 

Parents
  • Nigel Farage things you can get an autism diagnosis over a Zoom call from your GP

    I dislike Niggle Farage but to be fair on this subject I do know 3 people in the UK who received their diagnosis after a zoom call - no in person meeting, no parent / family member to give historical info etc.

    All 3 were private assessments rather than GP referrals due to the long wait times.

    I suspect this is a result of the long wait times and willingness of private practices to offer a diagnosis for the right price.

  • I do know 3 people in the UK who received their diagnosis after a zoom call

    Virtually the only way to get a diagnosis in parts of Scotland is privately. I picked someone who had been a team leader in ND in Glasgow for a couple of decades and decided to become self-employed. She was one of very few psychologists who were willing to assess older women. We did both assessments (childhood and adult) by zoom, which is not rare in Scotland due to distances between places/lack of public transport etc. I hate zoom calls and prefer face to face, but I had to concentrate so much I even managed the very long adult assessment without a break, which is a first for me.

    My assessor split the assessments because she wasn't willing to bother with the adult part if I didn't pass the childhood part. And no, being in my 70s with no close family left alive, there was no one to say what my childhood was like. 

    So, if you like, I am a fraud who consulted a fraud. Now, I'm not saying everyone in private practice is honest, but unless we know (personally or professionally) who is and who isn't honest, it might be unfair to both the practitioner and the person diagnosed to assume every diagnosis by zoom = fraud.

  • it might be unfair to both the practitioner and the person diagnosed to assume every diagnosis by zoom = fraud.

    I agree completely. The point I was making is that it is remarkable easy to get a diagnosis the way it was stated so it is not surprising we are being criticised for the process itself.

    This is nothing of our (as a group of autists) doing, but we are suffering as a result none the less.

    The system needs to change to solve this but there is nothing better (and viable) yet available to replace it with.

Reply
  • it might be unfair to both the practitioner and the person diagnosed to assume every diagnosis by zoom = fraud.

    I agree completely. The point I was making is that it is remarkable easy to get a diagnosis the way it was stated so it is not surprising we are being criticised for the process itself.

    This is nothing of our (as a group of autists) doing, but we are suffering as a result none the less.

    The system needs to change to solve this but there is nothing better (and viable) yet available to replace it with.

Children
  • I'm now confused whether you're saying it's remarkably easy to get any private diagnosis and that's what Farage means, or whether you're saying that diagnosing by zoom is dodgy.

    It is remarkably easy for you to speak to your GP, for them to give you the contact of a private practice that offers a fast turnaround and not to be too rigid on following the rules around the criteria required and for you to get the diagnosis.

    Not all GPs are sticklers for the rules so will do this to get you off their back and potentially save their practice the cost of the assessment.

    The diagnostic process by zoom is much less thorough than the recommended in-person process and from hearing from the people who went through this zoom process, it is largely giving the result you ask for so long as their AQ-50 results gave this indication.

    There is less in-person observation, no need for a witness and less steps overall, so it could be considered dodgy - or streamlined, all depending on your point of view.

    So going back to the point you ask about, your GP is giving you the contact for the zoom rather than doing it themselves, and you have to shell out a few grand for the process.

  • it is remarkable easy to get a diagnosis the way it was stated

    And I was disagreeing that it is remarkably easy to get a diagnosis, regardless of the medium, (face-to-face, zoom etc. I am saying that there may be people who sell a diagnosis for money, regardless of whether it's true or not. Farage's "get it over zoom from your GP" is a lie, in any case. 

    I'm now confused whether you're saying it's remarkably easy to get any private diagnosis and that's what Farage means, or whether you're saying that diagnosing by zoom is dodgy.

  • You can't get a diagnosis that way and there is NOTHING easy about getting a diagnosis.

    You can. I personally know 3 people who have done it this way using 2 London based practices. The cost was over £2k and the process used several multiple choice test questions (similar to AQ-50) and a one-to-one video call with a psychiatrist.

    This is not the same process that the NHS use but the diagnosis was still given and was accepted by the NHS onto the patients records. 

    Is it fair or correct - no, but it was a way for the people to get a formal diagnosis and start getting some of their needs met.

    I'm sorry if this does not match your experience or expectations but to label it as misinformation is wrong - it happens, especially where money is involved. 

  • The point I was making is that it is remarkable easy to get a diagnosis the way it was state

    You can't get a diagnosis that way (see my reply to you) and there is NOTHING easy about getting a diagnosis. 

    I wish you wouldn't spread misinformation.