An official review in England has found there is a risk of people being over-diagnosed with ADHD and autism.

I’ve added the BBC link, the article is being updated constantly.

www.bbc.co.uk/.../c64g7ym4314wt

Parents
  • I've wanted for so long for there to be more recognition of autism and ADHD. And now I want nothing more than for it to stop. I'm sick of our existence being questioned in the way that it is. How about they start trying to support people rather than try and find ways to make less of us "exist".

  • Better support is exactly what the report recommended. Slight smile

  • Whilst that sounds positive. Stating that autism and ADHD is at risk of being over diagnosed does not sound to me like they intend to support people. It sounds like they will tighten up the diagnostic process so less people are diagnosed. Then with lowered numbers can say look we are providing better support. Maybe I'm just cynical but I don't trust what is going on surrounding autism and ADHD at the moment.

  • I agree the whole diagnostic criteria needs to be looked at again and not just outdated nonsense like the ability to make eye contact. The need for a witness, some one who's known you since childhood is ridiculous for adults and what about young people in care who many not have anyone either?

    I think there's still a lot of old fashioned ideas arounf it not effecting women are still around too, those need addressing as women often mask heavier and present differently.

    I honestly dont' think they'd be able to get away with offering more support to fewer people, the need is so huge and the current resourses so miniscule. They may be able to do it with children, but I doubt it and that still leaves all the adults in need of support and the school leavers. They need to rememeber adults and school leaver vote.

  • I'm not sure which article you mean. If it's the BBC article, it's not an accurate summary of the report. The first sentence of the report is "Our country is experiencing a profound change in the need for support for people with mental health problems and neurodevelopmental conditions."

  • Yet the first sentence of that article is "An official review in England has found young people are at risk over being over-diagnosed with ADHD and autism."

  • Well I see your point on the lack of support. My point was more if they reduce who can be diagnosed and then offer support to the smaller numbers they can make it look like they've done more than they have but will leave many unable to be diagnosed.

    I was diagnosed through right to choose (only way it could be done in my area) and the psychiatrist that diagnosed me was very knowledgeable so I am confident in my diagnosis. But yes it should certainly be more regulated. A lot of NHS services don't diagnose people based on outdated nonsense like able to make eye contact. So it's not just the private sector that would need looking at.

  •  

    The report doesn't state that autism and ADHD is at risk of being overdiagnosed in England. It states "Similarly to ADHD, there is little evidence of a substantial change in underlying population prevalence, although uncertainty remains because there has been no recent England-wide prevalence study. The best available estimate remains around 1.2% among young people, based on the 2017 MHCYP survey. Again, there is no equivalent adult population survey data."

  • Seeing as so few of us get any meaningful support, I'm not quite sure how we get less support? I've never had any support since I was diagnosed, I've had the phone put down on me for mentioning autism when seeking help and I dont see how it could get worse it could get than that?

    From what I've read a lot of the private sector is pretty unregulated, how do you know that the person you're seeing for diagnosis is really qualified? I mean anyone could put up a certificate saying they're a psychologist, they might have a degree, but that dosen't make them qualified to do anymore than administer the AQ20 test and tell you what your score is and dump you back on the health service. A lot of the private sector do this for all sorts of things, they only do the easy stuff and as soon as anything gets complicated off to the NHS you go

Reply
  • Seeing as so few of us get any meaningful support, I'm not quite sure how we get less support? I've never had any support since I was diagnosed, I've had the phone put down on me for mentioning autism when seeking help and I dont see how it could get worse it could get than that?

    From what I've read a lot of the private sector is pretty unregulated, how do you know that the person you're seeing for diagnosis is really qualified? I mean anyone could put up a certificate saying they're a psychologist, they might have a degree, but that dosen't make them qualified to do anymore than administer the AQ20 test and tell you what your score is and dump you back on the health service. A lot of the private sector do this for all sorts of things, they only do the easy stuff and as soon as anything gets complicated off to the NHS you go

Children
  • I agree the whole diagnostic criteria needs to be looked at again and not just outdated nonsense like the ability to make eye contact. The need for a witness, some one who's known you since childhood is ridiculous for adults and what about young people in care who many not have anyone either?

    I think there's still a lot of old fashioned ideas arounf it not effecting women are still around too, those need addressing as women often mask heavier and present differently.

    I honestly dont' think they'd be able to get away with offering more support to fewer people, the need is so huge and the current resourses so miniscule. They may be able to do it with children, but I doubt it and that still leaves all the adults in need of support and the school leavers. They need to rememeber adults and school leaver vote.

  • Well I see your point on the lack of support. My point was more if they reduce who can be diagnosed and then offer support to the smaller numbers they can make it look like they've done more than they have but will leave many unable to be diagnosed.

    I was diagnosed through right to choose (only way it could be done in my area) and the psychiatrist that diagnosed me was very knowledgeable so I am confident in my diagnosis. But yes it should certainly be more regulated. A lot of NHS services don't diagnose people based on outdated nonsense like able to make eye contact. So it's not just the private sector that would need looking at.