Autism Genetic

I red on this site an article stating that Autism is highly genetic. If so, then maybe the diagnostic process should be changed. Especially the part of parental input. If Autism runs in families, then it's absolutely expected and probable, that parents of an assessed person will tell the assessor "but my son/ daughter is perfectly normal! There is nothing wrong with them!". I don't say, that parental input is totally irrelevant,  but sometimes it's the reason, why someone does not get the diagnosis and support. 

Parents often compare their children to themselves and consider their child's behaviour normal. Additionally parents often take suggestions that their son/daughter may have mental health issues, as an offence. This is the case with my mom. My behaviour in my childhood was very much different and often problematic. I heard my teachers telling my mom that they think, that im autistic. Although it was in mid nineties. She got mad and said, that the "stupid school psychologist tells her some bs". 

I was multiple times in life diagnosed, misdiagnosed,  there was depression,  tourette,  suspected epilepsy,  turned out- not, and I'm still in diagnostic process waiting to be finally properly diagnosed, 20 years after first contact with mental health professionals. 

Because of the demand (from many clinics) for an informant, many people, even in desperate situations are being cut off the support they need. I think, this should change, I hope it will. 

For my mom the fact, that I didn't like being taken on arms or lap as a baby and toddler wasn't problematic or alarming. More than half of my family aren't fans of physical contact. My mom, my sister, me, my grand parents. There was never any complain or thought,  that there might be something wrong,  because I protested as soon as taken on arms or lap. Just an example of how the symptoms get overlooked by tge family. Additionally, the family members often get used to someone's behaviour and needs. So for them "it's just me".

Parents
  • I think my parents show some traits. It is why they thought I had no issues, which convinced me there wasn't one. I even asked when I was a teenager if I was different.

    In my diagnosis, the assessor spoke to them. Their questionnaire had said there were no issues and they thought I was ok. It was interesting that their input didn't affect the diagnosis.

    Perhaps this is why they may put less weight on the informants information.

Reply
  • I think my parents show some traits. It is why they thought I had no issues, which convinced me there wasn't one. I even asked when I was a teenager if I was different.

    In my diagnosis, the assessor spoke to them. Their questionnaire had said there were no issues and they thought I was ok. It was interesting that their input didn't affect the diagnosis.

    Perhaps this is why they may put less weight on the informants information.

Children
  • Yes, at least some assessors understand it and trust their own judgement and not only the parental input.

    I used to cry and ask my mom why I'm so different and inferior to others (slower to catch up on things, not understanding jokes, clumsy, not having friends) my mom tried hard to convince me that everything was fine. But others did the opposite- kids at school bullied me, screamed at me, also attacked me once on my bike, I heard many times that I was ugly, that nobody likes me and never will, I heard "what are you looking for here, go away, we don't want you here" etc from my peers. I couldn't understand why and it was frustrating. And my mom's words were a pure gaslighting for me. They still ate but now I have the power of knowledge and I just ignore her. It would be highly frustrated if my mom's "she is fine" cut me off support. But im not gonna use her for the process and she not gonna even know it.