Only my opinion and here comes the but, only autistic people can truly understand autism, unless you experience it and live with it on a daily basis daily, you can’t fully comprehend it. We had to learn how to seem normal, we observed, made mental notes and even rehearsed when on our own with no guidance.
Experts only know what we have allowed them to see and try to explain, that’s when we are able and feel actually safe enough to do so. The growing bigotry against autism comes down to cost, the fear is that more people with a disability equals tax payer cost, most of us go out into the world everyday and try out best and ask for nothing. Those who can’t manage without help should be helped financially and with support.
I spent over three years waiting for a diagnosis, a positive diagnosis isn’t just handed out, it’s very invasive. if a doctor asks what I hoped to achieve from an assessment ? My answer is validation, finally understanding why I’m like I am and it answers why my life has been such utter chaos.
Even after diagnosis or self identification, we carry on going through hell as all the lost years and catastrophes start being processed, I still buy myself very little, my wife will sometimes ask if I would like something, I always reply no. Secretly I still believe I’m a bad person who should be punished and deserves nothing. Does this sound like someone who wants a trendy ‘label’? On bad days I still shut myself away as I don’t want people to experience my autism. I’ve found the most used word from autistic people is sorry, I personally find I’m always apologetic for something that’s not really my fault, and guess what? I don’t look autistic!
Only my opinion and here comes the but, only autistic people can truly understand autism, unless you experience it and live with it on a daily basis daily, you can’t fully comprehend it. We had to learn how to seem normal, we observed, made mental notes and even rehearsed when on our own with no guidance.
Experts only know what we have allowed them to see and try to explain, that’s when we are able and feel actually safe enough to do so. The growing bigotry against autism comes down to cost, the fear is that more people with a disability equals tax payer cost, most of us go out into the world everyday and try out best and ask for nothing. Those who can’t manage without help should be helped financially and with support.
I spent over three years waiting for a diagnosis, a positive diagnosis isn’t just handed out, it’s very invasive. if a doctor asks what I hoped to achieve from an assessment ? My answer is validation, finally understanding why I’m like I am and it answers why my life has been such utter chaos.
Even after diagnosis or self identification, we carry on going through hell as all the lost years and catastrophes start being processed, I still buy myself very little, my wife will sometimes ask if I would like something, I always reply no. Secretly I still believe I’m a bad person who should be punished and deserves nothing. Does this sound like someone who wants a trendy ‘label’? On bad days I still shut myself away as I don’t want people to experience my autism. I’ve found the most used word from autistic people is sorry, I personally find I’m always apologetic for something that’s not really my fault, and guess what? I don’t look autistic!
