BBC In Depth: the ongoing battle to define autism

https://www.bbc.co.uk/news/articles/cdew81wd2y8o

Warning: unsettling especially for those late diagnosed.

Parents
  • Yes. For many who are late diagnosed there was a lack of understanding as to what autism was. I believe it is only with increasing knowledge via the internet and getting to a stage where they were no longer able to 'cope' that late diagnosed people look for a diagnosis. It is only then, that explanations for things they experienced and tried to manage become clear. It is only in recent years for example that I have become aware that many people do not experience the sensitivities I have always struggled with. 

    I believe for late diagnosed adults, needs have increased by then and sometimes by then, support that they had relied upon in earlier years is no longer there. 

    I agree that support is needed for those with high needs, but for others who struggle with living a 'normal' life, it is much harder to ask for or explain the need for support and understanding. It is interesting in this time when we are expected to understand everyone's differences, that it appears that some are dismissed.

Reply
  • Yes. For many who are late diagnosed there was a lack of understanding as to what autism was. I believe it is only with increasing knowledge via the internet and getting to a stage where they were no longer able to 'cope' that late diagnosed people look for a diagnosis. It is only then, that explanations for things they experienced and tried to manage become clear. It is only in recent years for example that I have become aware that many people do not experience the sensitivities I have always struggled with. 

    I believe for late diagnosed adults, needs have increased by then and sometimes by then, support that they had relied upon in earlier years is no longer there. 

    I agree that support is needed for those with high needs, but for others who struggle with living a 'normal' life, it is much harder to ask for or explain the need for support and understanding. It is interesting in this time when we are expected to understand everyone's differences, that it appears that some are dismissed.

Children
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