BBC In Depth: the ongoing battle to define autism

https://www.bbc.co.uk/news/articles/cdew81wd2y8o

Warning: unsettling especially for those late diagnosed.

Parents
  • So Uta Frith wants those who are late diagnosed to lose their diagnosis.

    I have emailed my MRI scans to her which showed I believe increased areas for repetition in the brain and some supporting documents and my scores and story. I also sent her two short videos I did a year before diagnosis for a project. It was difficult doing those but it was for a project and I wanted her to perhaps comment on the blinking in the videos and also looking away from the camera. I said it was for education purposes and perhaps comment on the video. I wonder if she will. I read in the article some people have emailed them.

    I saw a specialist in 2015 and they wrote down “aspergers” I knew someone who was diagnosed with aspergers before 2012 and they thought I was diagnosed to with autism or aspergers. I am glad that I know my case well from childhood and have my brain scans.  I have been confused at times as to which one I would have been diagnosed as I don’t have developmental checks on my records-but seemed to meet both criteria I have looked at. I did have notes as an infant medical wise though which was helpful.

    May be the split from aspergers has been too difficult. It is seeming some celebrities diagnosed with autism today describing themselves as mild autism seem perhaps a bit different than those who were diagnosed aspergers before 2013. May be this is not the case and we cannot determine it is too a poor judge, but that is how it seems. I think the spectrum has got potentials and the DSM 6 will come out in 2030 so may be they feel they need to speak out on this now to.

    They wrote that people get diagnosed for traits—it meant to be significantly affected and I hope that only happens.

Reply
  • So Uta Frith wants those who are late diagnosed to lose their diagnosis.

    I have emailed my MRI scans to her which showed I believe increased areas for repetition in the brain and some supporting documents and my scores and story. I also sent her two short videos I did a year before diagnosis for a project. It was difficult doing those but it was for a project and I wanted her to perhaps comment on the blinking in the videos and also looking away from the camera. I said it was for education purposes and perhaps comment on the video. I wonder if she will. I read in the article some people have emailed them.

    I saw a specialist in 2015 and they wrote down “aspergers” I knew someone who was diagnosed with aspergers before 2012 and they thought I was diagnosed to with autism or aspergers. I am glad that I know my case well from childhood and have my brain scans.  I have been confused at times as to which one I would have been diagnosed as I don’t have developmental checks on my records-but seemed to meet both criteria I have looked at. I did have notes as an infant medical wise though which was helpful.

    May be the split from aspergers has been too difficult. It is seeming some celebrities diagnosed with autism today describing themselves as mild autism seem perhaps a bit different than those who were diagnosed aspergers before 2013. May be this is not the case and we cannot determine it is too a poor judge, but that is how it seems. I think the spectrum has got potentials and the DSM 6 will come out in 2030 so may be they feel they need to speak out on this now to.

    They wrote that people get diagnosed for traits—it meant to be significantly affected and I hope that only happens.

Children
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