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Not offered assessment for personalised plan

Aven

Hello!!
I was reading through some of the NAS pages for after diagnosis, and one of them (this one: https://www.autism.org.uk/advice-and-guidance/diagnosis/after-diagnosis/formal-support-following-an-autism-diagnosis) says that everyone diagnosed with autism should be offered a personalised plan? Am I reading that correctly? If so, I was never offered this...

I have level 1 autism & no learning disability, so I'm not sure if maybe the personalised plan is just for those who need more support for their autism?
Though I do feel like I would find a bit of help very useful.. Like maybe a therapist or someone to just talk to about what im struggling with and be like "Is this an autism thing?", that would be very helpful to me, since I have *really* been struggling to know where to go for support and knowing what support I can get. (All the online things that talk about support are so vague! Like how places should provide "reasonable adjustments".. i dont know what that means for me in practice Sweat smile)

Anyone here know if I am eligible for this personalised plan and whether I might benefit from getting one? And if so, how I can go about getting it?

Thanks!

Parents

  • Dear Aven,

    From my understanding NICE guidelines are recommendations for health services rather than direct rules. However, I think that you could raise that a personalised plan may help you access support. . 

    I thought I could do some signposting that may be beneficial to take a look at: 

    Best wishes,

    Olivia Mod

  • in reply to Olivia Mod

    I looked up all the stuff you suggested and none of it was any help, your ask Ash service wasn't any help as theres nothing in North Wales apart from the group I've already been to who are absolutely useless.

    Sorry to sound so negative, but not all of us have services to access or the services themselves are the ones denying any chance of access, mostly because they won't tell you what they do and what services they provide and its like a game of 20 Questions and if you've not asked the right question after 20 goes you lose. It feels like theres some sort of magic formula that will unlock everything only as soon as you get even a sniff of of it it's pulled away.

    Something I think would be good, if is users of these services were able to rank them and give some feedback on here, I know one persons experience won't be definitive, but patterns will emerge and it may make the services themselves more responsive to what users or potential users actually need and want because it seems like they live in an echo chamber where they're not listening and continue to provide services that could be made much better.

Reply
  • in reply to Olivia Mod

    I looked up all the stuff you suggested and none of it was any help, your ask Ash service wasn't any help as theres nothing in North Wales apart from the group I've already been to who are absolutely useless.

    Sorry to sound so negative, but not all of us have services to access or the services themselves are the ones denying any chance of access, mostly because they won't tell you what they do and what services they provide and its like a game of 20 Questions and if you've not asked the right question after 20 goes you lose. It feels like theres some sort of magic formula that will unlock everything only as soon as you get even a sniff of of it it's pulled away.

    Something I think would be good, if is users of these services were able to rank them and give some feedback on here, I know one persons experience won't be definitive, but patterns will emerge and it may make the services themselves more responsive to what users or potential users actually need and want because it seems like they live in an echo chamber where they're not listening and continue to provide services that could be made much better.

Children
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