Behaviours re-appearing

Hi, I'm becky I have three sons, dylan 7, Ryan 6 and Rhys 4. Ryan was diagnosed asd higher functioning in May 2012. I always knew there was something different about him, nobody believed me until he started nursery. He has had speech and language therapy as he was also diagnosed with selective mutism, he has had therapy to enable him to be confident enough to interact with other kids and adults. In the past 18 mont. hs he now holds conversations ( not just about batman), he goes to friends houses to eat, he attends a mainstream school and is top of his class for both reading and writing, and even attends party's, he is having his very first birthday party at the end of the month. All the professionals that were involved have discharged us one by one and things were amazing, yeah he still had his ryanisms and can be temperamental but compared to what he was, then came the summer holidays. I organised it so we had a plan for everyday of every week we knew what we were doing everyday, I was very smug, until I dislocated my knee cleaning the bathroom. That's when his behaviour started to change. He started smearing his poo which he hadn't done in 12 months. Then the tantrums started more frequently, lasting longer and longer. Then the violence came back, in the past he has thrown me down the stairs, kicked hit bitten, even to himself, he broke his brothers collar bone too. I'm so scared I cant deal with it again. Although he now holds a conversation, I have been too busy congratulating us to notice that he still has no interest in other people, or their opinions. I have no support whatsoever, my husband is better than he was but still believes deep down that Ryan is just naughty, my parents and siblings no longer look after him as they punish him when he is not being naughty, I don't have many friends as I'm always either caring for my kids or trying to do chores as I can't do anything when Ryan is around. Will he go back to normal? Is this going to happen a lot?

Parents
  • Thank you, for your reply, hearing from someone who knows what could be going on in his head is a real help. I understand there is no cure but do feel as though I have been really mislead by professionals, I was under the impression as you say ryan could possibly be trained to act in a socially acceptable way and because for the past twelve months he has, this sudden change really scared me into realising that he will always struggle day to day. I want him to feel happy and have the confidence in me to help him. I know he is so young which makes it harder. I have managed to talk to him and he appears to be struggling in school as he went into year 1 in September and he says he can't get his merits cos he cant do his numbers. I plan to speak to his teacher he has been off sick this week and his behaviour has improved dramatically. He feels like he has been tricked because he has been good and tried hard but still not got his merit.thank you again for your response, any further advice will be greatly appreciated. I really wish I could take the autism for him or just have some insight into how he sees the world just so I can try in some way to comfort him and be there for him x

Reply
  • Thank you, for your reply, hearing from someone who knows what could be going on in his head is a real help. I understand there is no cure but do feel as though I have been really mislead by professionals, I was under the impression as you say ryan could possibly be trained to act in a socially acceptable way and because for the past twelve months he has, this sudden change really scared me into realising that he will always struggle day to day. I want him to feel happy and have the confidence in me to help him. I know he is so young which makes it harder. I have managed to talk to him and he appears to be struggling in school as he went into year 1 in September and he says he can't get his merits cos he cant do his numbers. I plan to speak to his teacher he has been off sick this week and his behaviour has improved dramatically. He feels like he has been tricked because he has been good and tried hard but still not got his merit.thank you again for your response, any further advice will be greatly appreciated. I really wish I could take the autism for him or just have some insight into how he sees the world just so I can try in some way to comfort him and be there for him x

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