Behaviours re-appearing

Hi, I'm becky I have three sons, dylan 7, Ryan 6 and Rhys 4. Ryan was diagnosed asd higher functioning in May 2012. I always knew there was something different about him, nobody believed me until he started nursery. He has had speech and language therapy as he was also diagnosed with selective mutism, he has had therapy to enable him to be confident enough to interact with other kids and adults. In the past 18 mont. hs he now holds conversations ( not just about batman), he goes to friends houses to eat, he attends a mainstream school and is top of his class for both reading and writing, and even attends party's, he is having his very first birthday party at the end of the month. All the professionals that were involved have discharged us one by one and things were amazing, yeah he still had his ryanisms and can be temperamental but compared to what he was, then came the summer holidays. I organised it so we had a plan for everyday of every week we knew what we were doing everyday, I was very smug, until I dislocated my knee cleaning the bathroom. That's when his behaviour started to change. He started smearing his poo which he hadn't done in 12 months. Then the tantrums started more frequently, lasting longer and longer. Then the violence came back, in the past he has thrown me down the stairs, kicked hit bitten, even to himself, he broke his brothers collar bone too. I'm so scared I cant deal with it again. Although he now holds a conversation, I have been too busy congratulating us to notice that he still has no interest in other people, or their opinions. I have no support whatsoever, my husband is better than he was but still believes deep down that Ryan is just naughty, my parents and siblings no longer look after him as they punish him when he is not being naughty, I don't have many friends as I'm always either caring for my kids or trying to do chores as I can't do anything when Ryan is around. Will he go back to normal? Is this going to happen a lot?

Parents
  • Not sure if you are going to like the start of this reply much but please read on. There are a lot of other threads on here with us adult Aspies and Auties trying to tell parents that there is no cure for autism.

    Your son in young. A lot of so called autism professionals think that early intervention will result in better outcomes for children with autism, for them a better outcome is the child acting NT. Here acting is the most important word.

    We are not NT. All we can do is replay strategies using our conscious mind to actively memorise, retrieve and then act out being NT. However, this leads to Aspie burnout, it is mentally exhausting, especially if it has to be done all day every day. Some NT so called autism experts think that training autistic people leads to a result like driving a car where it becomes ingrained and automatic to behave like an NT, it does not and never will, it takes an immense amount of effort.

    Now here is the good news, start trying to think more like someone with autism, believe me unless you have autism you will never be able to get inside how we struggle with every part of the NT world, but you will have to try. Think, first, that everything has to be learned and memorised and repeated, so don't overload, just because one thing is learned doesn't mean it is easy and automatic to repeat it, it isn't.  Next every single autistic person is different from every other one, this is because the way we make sense of a totally alien and confusing world is individual to us, no two people have the same experiences and therefore no two people develop the same way of dealing with the world. Next, start listening to adult autistic people, we are the ones that can help you, not so-called expert NTs.

    So, think about what is wrong with your son's behaviour. Is he overloaded? Why is each and every behaviour happening. Autistic people need ages to assess and understand things so if you want to ask him about his behaviour don't expect him to be able to give you an answer right away, give him lots of time to think about why he feels something. Never ask for information when he is upset, there is no spare capacity to think when trying to cope with lots of anxiety. As a child I would not have been able to give any coherent explanation for my behaviour, but I might have been able to say what would stop me from doing it again, so maybe don't ask about feelings but about a practical strategy so that the violent behaviour (for example) doesn't happen again. Don't look for reasons right now, your son is so young, I was a young adult before I could really answer those type of questions, but I knew what I needed to stop in my environment to prevent me from being selectively mute, or overloaded or scared or upset. Then of course you have to be prepared to change the environment to prevent the behaviour happening again.

    Hope this is in someway helpful.

Reply
  • Not sure if you are going to like the start of this reply much but please read on. There are a lot of other threads on here with us adult Aspies and Auties trying to tell parents that there is no cure for autism.

    Your son in young. A lot of so called autism professionals think that early intervention will result in better outcomes for children with autism, for them a better outcome is the child acting NT. Here acting is the most important word.

    We are not NT. All we can do is replay strategies using our conscious mind to actively memorise, retrieve and then act out being NT. However, this leads to Aspie burnout, it is mentally exhausting, especially if it has to be done all day every day. Some NT so called autism experts think that training autistic people leads to a result like driving a car where it becomes ingrained and automatic to behave like an NT, it does not and never will, it takes an immense amount of effort.

    Now here is the good news, start trying to think more like someone with autism, believe me unless you have autism you will never be able to get inside how we struggle with every part of the NT world, but you will have to try. Think, first, that everything has to be learned and memorised and repeated, so don't overload, just because one thing is learned doesn't mean it is easy and automatic to repeat it, it isn't.  Next every single autistic person is different from every other one, this is because the way we make sense of a totally alien and confusing world is individual to us, no two people have the same experiences and therefore no two people develop the same way of dealing with the world. Next, start listening to adult autistic people, we are the ones that can help you, not so-called expert NTs.

    So, think about what is wrong with your son's behaviour. Is he overloaded? Why is each and every behaviour happening. Autistic people need ages to assess and understand things so if you want to ask him about his behaviour don't expect him to be able to give you an answer right away, give him lots of time to think about why he feels something. Never ask for information when he is upset, there is no spare capacity to think when trying to cope with lots of anxiety. As a child I would not have been able to give any coherent explanation for my behaviour, but I might have been able to say what would stop me from doing it again, so maybe don't ask about feelings but about a practical strategy so that the violent behaviour (for example) doesn't happen again. Don't look for reasons right now, your son is so young, I was a young adult before I could really answer those type of questions, but I knew what I needed to stop in my environment to prevent me from being selectively mute, or overloaded or scared or upset. Then of course you have to be prepared to change the environment to prevent the behaviour happening again.

    Hope this is in someway helpful.

Children
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