Son diagnosed Autism Level 1 at age 23

Good afternoon, I hope that someone can guide on how to approach my son after diagnosis. He was diagnosed 5 days ago and as soon as I try to talk about what I have been researching he becomes overwhelmed.

He was diagnosed with ADHD back in 2022 and only after suffering from social anxiety, depression and IBS the youth mental health team started to suspect the autism. This has now been confirm and we were told to contact the GP and ask for an autism support package. I have made the appointment but I am clueless and have no idea which support or how much support he can get.

He currently has been living with me and his little sister after suspending Uni when he had 8 months left to finish his degree, it's been nearly two years and it does not seem he will ever return. I had breast cancer last year and it has become crucial that he becomes an independent adult because I do not know how the future will look like for me. It has also  been very difficult to live with him as since he is back home his attitude has become aggressive to the point I barely talk to him.

I want to help him but I am not sure I am the right mother for him, I am not sure I have the patience any longer.

Parents
  • Hi and welcome to the community.

    I'll share my own experience, and also some resources. Your post covers a few different topic areas, so I'll try and split it into sections, to make it a less challenging read! There's a lot here, but I wanted to be as specific as possible in signposting you to resources that might be helpful.

    1. After diagnosis

    After my own late diagnosis, I retreated from my parents. (They live a long distance away, so that was obviously easier for me to do than if I'd been living with them). There can be a lot to process and a lot of emotions to try and deal with, not necessarily just immediately, but potentially also over time (days, weeks, months, years) - although the experience can obviously vary a lot from person to person. This article explains more:

    NAS - How will I feel after receiving an autism diagnosis?

    I also felt utterly exhausted in the period immediately after my diagnosis. The process had felt extremely stressful, and I needed (although wasn't actually able, for reasons that aren't relevant here) to recuperate for a while in super-low demand mode. This article explains more about these kinds of issues:

    NAS - Autistic fatigue and burnout

    If  your son hasn't yet seen them, and when he feels ready (keeping mind what I mentioned above), perhaps you could suggest that he has a look through the "After diagnosis" section in the diagnosis hub. He might also find it helpful to join this community. There's no obligation to post regularly or even at all - but he might find it helpful to read about our various experiences and struggles, and the things that have helped us.

    2. Support for your son

    The diagnosis hub includes this article, which might be a useful starting point. It explains, for example, how guidelines recommend that his GP (or other key worker) works with him to develop a personalised plan: 

    NAS - Formal support following an autism diagnosis

    His diagnostic report might itself suggest some follow up actions. For example, therapy or counselling are often recommended, for our GPs to arrange. If so, and before arranging anything, your son might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful:

    The Autistic Survival Guide to Therapy

    I'll also just mention a couple of other books that I and others have found helpful early on in our post-diagnosis journeys - the first one might make for a timely gift:

    Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!

    How to Be Autistic (free download currently available via this page)

    3. Aggressive behaviour

    since he is back home his attitude has become aggressive to the point I barely talk to him

    Alongside the resources I mentioned at the beginning, this might also be helpful:

    Autism and anger management - a guide for parents and carers

    4. Support for you

    You might find this article helpful: 

    NAS - Emotional support for family members after a diagnosis

    It includes, for example, details of the NAS's parent to parent helpline:

    NAS - Parent to Parent Emotional Support Helpline

    5. Independent living 

    There are various other resources that might be helpful for exploring this, including:

    NAS - Social care

    NAS - Financial help, money and benefits

    I hope that some of this, at least, is helpful.

Reply
  • Hi and welcome to the community.

    I'll share my own experience, and also some resources. Your post covers a few different topic areas, so I'll try and split it into sections, to make it a less challenging read! There's a lot here, but I wanted to be as specific as possible in signposting you to resources that might be helpful.

    1. After diagnosis

    After my own late diagnosis, I retreated from my parents. (They live a long distance away, so that was obviously easier for me to do than if I'd been living with them). There can be a lot to process and a lot of emotions to try and deal with, not necessarily just immediately, but potentially also over time (days, weeks, months, years) - although the experience can obviously vary a lot from person to person. This article explains more:

    NAS - How will I feel after receiving an autism diagnosis?

    I also felt utterly exhausted in the period immediately after my diagnosis. The process had felt extremely stressful, and I needed (although wasn't actually able, for reasons that aren't relevant here) to recuperate for a while in super-low demand mode. This article explains more about these kinds of issues:

    NAS - Autistic fatigue and burnout

    If  your son hasn't yet seen them, and when he feels ready (keeping mind what I mentioned above), perhaps you could suggest that he has a look through the "After diagnosis" section in the diagnosis hub. He might also find it helpful to join this community. There's no obligation to post regularly or even at all - but he might find it helpful to read about our various experiences and struggles, and the things that have helped us.

    2. Support for your son

    The diagnosis hub includes this article, which might be a useful starting point. It explains, for example, how guidelines recommend that his GP (or other key worker) works with him to develop a personalised plan: 

    NAS - Formal support following an autism diagnosis

    His diagnostic report might itself suggest some follow up actions. For example, therapy or counselling are often recommended, for our GPs to arrange. If so, and before arranging anything, your son might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful:

    The Autistic Survival Guide to Therapy

    I'll also just mention a couple of other books that I and others have found helpful early on in our post-diagnosis journeys - the first one might make for a timely gift:

    Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!

    How to Be Autistic (free download currently available via this page)

    3. Aggressive behaviour

    since he is back home his attitude has become aggressive to the point I barely talk to him

    Alongside the resources I mentioned at the beginning, this might also be helpful:

    Autism and anger management - a guide for parents and carers

    4. Support for you

    You might find this article helpful: 

    NAS - Emotional support for family members after a diagnosis

    It includes, for example, details of the NAS's parent to parent helpline:

    NAS - Parent to Parent Emotional Support Helpline

    5. Independent living 

    There are various other resources that might be helpful for exploring this, including:

    NAS - Social care

    NAS - Financial help, money and benefits

    I hope that some of this, at least, is helpful.

Children
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