Son diagnosed Autism Level 1 at age 23

Good afternoon, I hope that someone can guide on how to approach my son after diagnosis. He was diagnosed 5 days ago and as soon as I try to talk about what I have been researching he becomes overwhelmed.

He was diagnosed with ADHD back in 2022 and only after suffering from social anxiety, depression and IBS the youth mental health team started to suspect the autism. This has now been confirm and we were told to contact the GP and ask for an autism support package. I have made the appointment but I am clueless and have no idea which support or how much support he can get.

He currently has been living with me and his little sister after suspending Uni when he had 8 months left to finish his degree, it's been nearly two years and it does not seem he will ever return. I had breast cancer last year and it has become crucial that he becomes an independent adult because I do not know how the future will look like for me. It has also  been very difficult to live with him as since he is back home his attitude has become aggressive to the point I barely talk to him.

I want to help him but I am not sure I am the right mother for him, I am not sure I have the patience any longer.

Parents
  • Hi NSO,

    Thank you for sharing your experience with our online community. From what you have described, you are doing your best to support your son while also coping with your own health challenges, and that is a great deal for anyone to manage. Five days is still very early after an autism diagnosis, so giving him time to process the news while seeking guidance from your GP and local autism support services is a positive step.

     Our website has a diagnosis hub, this includes information, practical and multimedia resources to support autistic people and their families before during and after diagnosis.  

     You may want to visit the other resources on our website, we have advice and guidance on a wide range of information about autism, socialising and relationships, communication and education: https://www.autism.org.uk/advice-and-guidance 

     You can try searching on our Autism Services Directory for diagnostic services in your local area.  The Directory also includes listings for support and social groups for autistic people, their families and friends. 

     I hope you find this information helpful.

     Rishma Mod

Reply
  • Hi NSO,

    Thank you for sharing your experience with our online community. From what you have described, you are doing your best to support your son while also coping with your own health challenges, and that is a great deal for anyone to manage. Five days is still very early after an autism diagnosis, so giving him time to process the news while seeking guidance from your GP and local autism support services is a positive step.

     Our website has a diagnosis hub, this includes information, practical and multimedia resources to support autistic people and their families before during and after diagnosis.  

     You may want to visit the other resources on our website, we have advice and guidance on a wide range of information about autism, socialising and relationships, communication and education: https://www.autism.org.uk/advice-and-guidance 

     You can try searching on our Autism Services Directory for diagnostic services in your local area.  The Directory also includes listings for support and social groups for autistic people, their families and friends. 

     I hope you find this information helpful.

     Rishma Mod

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