Private Diagnosis?

Hi there

Wondered if I could ask some advice please?

My husband has been referred through the NHS for a full ASD assessment. He's really struggling, and the waiting time for the initial assessment is over 3 years, so we are thinking about going privately.

My concern is that if he is prescribed any medication, will the NHS honour the private assessment? I have contacted a place listed on the National Austic Society directory, but just wondered if people had good or bad experiences going privately.

Thankyou in advance for all help and advice recieved.

Parents
  • I did a private assessment, like you I'm in Scotland, and our area doesn't actually do assessments for adults so it was the only option.

    I don't think there is any medication they would prescribe you for autism, though it's something to consider if it's adhd too -I think you would then have to go to your GP, see if they accepted the private diagnosis (I've heard someone say it was refused as it wasn't NHS), and then see if they would do shared care to get the medication through NHS, else you'd be stuck with a private prescription. But as I said, that's more ADHD, not for autism. 

    I've never spoken to my GP about it, so don't know, but I wasn't expecting any help from them anyway. Maybe if they accepted it you could see if there was any counselling available? It would depend on your area though. If you are in Scotland, NAS Scotland have a 'What's Next' programme for those on the path/self diagnosed or newly diagnosed to help. You can find out on the NAS Scotland pages:
    https://www.autism.org.uk/what-we-do/scotland

  • Thanks so much for your reply. Yeah its more from an ADHD point of view wether the gp would honour the diagnosis and any prescriptions. We just dont wanna pay to go down a private route thinking he'll get any help, when in reality the nhs wont recognise it, and he still has to wait for the nhs service.

  • You could try speak to your GP first then, and discuss it with them, whether they accept your proposed option, and if they would do shared care. If they agree to the private option, then it might be something to think about, but if they won't, it might save you the money!

  • This is the problem in Scotland. As far as I know, our NHS stopped having shared care recently and do not provide adult assessments, which effectively closes the door to ADHD medication for most people on the NHS. It's a blow to those of us whose only option is private diagnosis and - now - paying for medication privately. I see no point now in having my ADD privately diagnosed, although I am pursuing a private diagnosis for autism just to eliminate the imposter's syndrome and give me confidence to request reasonable adjustments from organisations that I have to deal with. For me, that's generally a matter of obtaining the information I need to deal with something, as I'm generally viewed as awkward and dislike being patronised due to sex or age.

  • Potential ongoing medicine costs will be a factor to consider then, and as Bunny said, you would need to make sure you paid for the combined test if your husband wants to be tested for both. 

    Yeah, I don't think Scotland has a great track record with ND care on the NHS, though if you keep your NHS appointment for 2 years away, you might be able to transfer to NHS care after if they conclude the same?

    But it's also worth exploring help out there now either way that isn't medication, either way! If he is struggling, some therapy might help, or even just talking to others? I wonder if you could get any talking therapy from your doctor? Otherwise that might have to be private too. Sorry, it's a hard decision, but wishing you all the best with it!

Reply
  • Potential ongoing medicine costs will be a factor to consider then, and as Bunny said, you would need to make sure you paid for the combined test if your husband wants to be tested for both. 

    Yeah, I don't think Scotland has a great track record with ND care on the NHS, though if you keep your NHS appointment for 2 years away, you might be able to transfer to NHS care after if they conclude the same?

    But it's also worth exploring help out there now either way that isn't medication, either way! If he is struggling, some therapy might help, or even just talking to others? I wonder if you could get any talking therapy from your doctor? Otherwise that might have to be private too. Sorry, it's a hard decision, but wishing you all the best with it!

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