? Dealing with a burnout or struggling with mental health or both

Hi

I’m in my 30’s and I’ve recently filled in a self referral for an autism assessment as I was never picked up at school. I’ve currently been off work (as a nurse in the NHS) for almost 6 months with depression and anxiety, but after research and some community support II think it’s more a burnout with potential depression and anxiety together. Things have slowly improved and I’m going back to work soon but the anxiety has started to over take over the low mood/burnout is horrible and I have a fear once I’m in work I’m going to slip back into a burnout. I’ve been going into work to touch basis and I’m ok as I know I can escape but I worry I’m not getting the full support etc I’d get if I had an autism diagnosis. 

Due to living in Wales there’s a 3-3.5 year waiting list and no way to get an assessment quicker through my job etc unless I can pay which is not likely currently. 

I just really worry due to not getting the correct support in the community as I’ve only got counselling as I’m low risk and no diagnosis of anything to help, I’m not getting the results I need to get my life fully back on track. 

(sorry it’s a bit long winded and deep) 

  • Sorry, Suzanne. I thought I was writing facts, not offering legal advice. As to employment tribunals setting higher standards about what is 'reasonable' for large employers, they follow the EHRC guidance:

    "Various factors influence whether a particular adjustment is considered reasonable.  The test of what is reasonable is ultimately an objective test and not simply a matter of what you may personally think is reasonable. 

    When deciding whether an adjustment is reasonable you can consider: 

    • how effective the change will be in avoiding the disadvantage the disabled worker would otherwise experience
    • its practicality
    • the cost
    • your organisation’s resources and size
    • the availability of financial support."



  • Please take care not to breach rule 6 and provide legal advice.  Always seek professional help with these matters

    Thanks

    Suzanne Mod

  • Hi. I used to teach equality legislation in-house within a government department, and later, I practiced as a duty-of-care specialist, finding reasonable adjustments in non-physical cases.

    Basically, the Equality Act defines disability in terms of impairment - something that affects your life every day. This is what the guidance issued by the EHRC (Equality and Human rights Commission) says:

    • The Act says that a person has a disability if they have a physical or mental impairment which has a long-term and substantial adverse effect on their ability to carry out normal day-to-day activities. Physical or mental impairment includes sensory impairments such as those affecting sight or hearing. (code 2.12)


    [Edit by mod - This users feels that] You're much better off working for a public organisation as you will generally have clear policies you can refer to and tribunals will assume they are better able to afford adjustments, which increases the range of what is 'reasonable'. However, in my experience, HR and management can be at a loss over "mental health" (how I hate that phrase!) issues. That can produce benefits as well as frustrations.

    You can inform HR in writing that you are autistic and awaiting diagnosis. I'd tell them that due to NHS waiting lists, diagnosis can take up to 4 years in your area. Ask for a copy of your trust's policies regarding disability and ask to see the relevant HR expert on disability to discuss what reasonable adjustments might be offered at this stage. Whatever happens, think about what sort of adjustments you would like and find out what they can offer (which may include things you haven't thought of).

    Now, just because legislation exists and you work for a national employer, that doesn't mean you'll get good treatment. Good luck!

  • Under employment law the diagnosis makes no difference, regardless of what HR or their policy says.  HR work for your employer, and not you. 

    Your focus need to be your recovery and health. Not justifying your needs to others. Have a look at the resources others have shared. 

    My heart goes out to you. The world isn't designed for the neurodiverse. I wish you the best. 

  • I'm having a burnout, presently, too. Stress, plus dehydration, leads to thumping headaches.

    Sorting out clutter, during the weekend, overwhelmed me.

  • Have you told them that you've been referred for assessment? It still counts as a disability as long as the difficulties have been present for over a year. You don't have to actually have the diagnosis. Even if someone had self diagnosed and told their work they would have to take it into account. 

  • Thank you 

    I work in England but live in wales so my nhs is will be the same as you 

    my manager is supportive but I don’t seem to get the support you’d get if you fitted under the disability in work 

    even union haven’t been able to offer anything 

  • Hi 

    thank you, if I have a diagnosis I’d come under the disability section in the policy and I’d receive more support and adjustments in work.

    I’m due to go back to counselling soon (to continue about the low mood and anxiety) as that’s my only support left in the community but I don’t know if I’ll be wasting go their time as nothings really changed 

  • Have you mentioned autism to work at all? As you've requested a referral you could  tell your HR that you've been referred for autism assessment by your GP because they identified that you have traits. You can then ask for reasonable adjustments. You don't need to have the diagnosis. They may give you an occupational health assessment which will help identify adjustments, 

    After diagnosis there doesn't seem to be a lot of help for adults anyway. I'm in the same boat as you (signed off sick with burnout and returning to work soon) and I haven't been offered any NHS support other than counselling. I'min England though - maybe it's different in Wales. 

  • Hi and welcome to the community.

    I suggest seeking support from your GP. Alongside doing that, you might find the advice and suggested strategies in these NAS resources helpful:

    I worry I’m not getting the full support etc I’d get if I had an autism diagnosis

    These NAS resources might be helpful in that respect. The first explains, for example that:

    "Because you ... may be waiting a long time for an autism assessment, the GP or other professional who made the referral should offer as much support as possible during this time. A formal diagnosis is often not required to access support, however this will depend on the kind of support that may be needed".

    "Even if help is not offered, it may still be available, and individuals can request support themselves if it is needed."

    NAS - What can I do while waiting for an autism assessment? > Can I get support while waiting to be assessed?

    NAS - What can I do if formal support is not offered or is not enough

    More specifically, the Employment section has articles including:

    • What support can I get at work as an autistic person?
    • What can I do if I’m having trouble at work? 
    I think it’s more a burnout with potential depression and anxiety together.

    These might be helpful alongside talking to your GP:

    NAS - Autistic fatigue and burnout

    NAS Professional Practice - Understanding autistic burnout

    NAS - Anxiety (including discussion in the context of autism)

    NAS - Depression (ditto)

    NAS - Seeking help with mental health

    There's also some great (free) advice here from Dr Megan Neff - a neurodivergent author, clinician and advocate:

    Autistic Burnout Recovery: How to Build a Recovery Plan

    I also have this book of hers. It's very user-friendly, including lots of diagrams and worksheets:

    The Autistic Burnout Workbook: Your Guide to Your Personal Recovery Plan

    I hope that some of the information here is helpful.

  • Your posit isn't long-winded at all! I'm sorry you're having a hard time.

    I'm off work myself with burnout. I did seek a diagnosis from the GP a few years ago, but was bounced from service to service - and gave up in the end. I didn't have the energy at the time. The local autism hub said they'd support with that recently, but I'm yet to even make it on to any waiting lists as yet.

    My therapist administered a screening test (AAA). But you can get them fairly cheaply if you need a piece of paper. Fortunately my employer is supportive. Actually, they haven't actually asked me if I've been diagnosed. They may have assumed, I don't know. But I haven't had to cross that bridge yet. Luckily, my employer is supportive. And as the union rep I know you don't need one legally. May I ask why you're seeking a diagnosis? And if you're in a union?

    I'm struggling with knowing what reasonable adjustments to ask for. Having spent the last five decades masking, I'm not sure having a diagnosis would help me much with that tbh. I've been working with autistic young people for 20 years, and knew I was autistic the moment I met an autistic child. My son's autistic. I had never heard of autistic burnout, however, until one day I woke up and couldn't get out of bed. Or speak. Or complete a simple task. Out of nowhere, as far as I knew at the time. I was stressed and didn't know, Although in retrospect, I had high blood pressure, my hair was falling out, I was tired, and had crazy tinnitus. I think it's probably happened before. After 2 months I'm starting to feel somewhat more functional - but there's still a way to go. In the end, I just had to give into it and stop. I mean, stop everything. I hardly left my bed for weeks.

    Good luck!