31 newly diagnosed daughter

My 31 year old daughter has been newly diagnosed with autism level1. Suddenly she doesn’t pick up the phone and rarely visits. How do I approach this? I lost my husband her Dad 4 months ago.

Parents
  • Hi

    I'm very sorry for your loss. You know your daughter best, so I won't presume to know how you should approach it. But I can share my own experience, and some resources that might be helpful. 

    I retreated from my parents (who live a long distance away) after my diagnosis, too. There can be a lot to process and a lot of emotions to try and deal with, not necessarily just immediately, but potentially also over time (days, weeks, months, years) - although the experience can obviously vary a lot from person to person. This article explains more:

    NAS - How will I feel after receiving an autism diagnosis?

    I also felt exhausted in the period immediately after my diagnosis. The process had felt extremely stressful, and I needed (although wasn't actually able, for reasons that aren't relevant here) to recuperate for a while in super-low demand mode.

    You might also find it helpful to read through the NAS's other Diagnostic hub resources - which also include, for example: 

    NAS - Emotional support for family members after a diagnosis

    If  your daughter hasn't yet seen them, perhaps you could suggest that she has a look through the "After diagnosis" section?

    She might also find it helpful to join this community.

    Her diagnostic report might suggest some follow up actions. For example, therapy or counselling are often recommended, for our GPs to arrange. 

    If so, and before arranging anything, she might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful:

    The Autistic Survival Guide to Therapy

    Finally, I'll just mention a couple of other books that I and others have found helpful early on in our post-diagnosis journeys - the first one might make for a timely and thoughtful gift:

    Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!

    How to Be Autistic (free download currently available via this page)

Reply
  • Hi

    I'm very sorry for your loss. You know your daughter best, so I won't presume to know how you should approach it. But I can share my own experience, and some resources that might be helpful. 

    I retreated from my parents (who live a long distance away) after my diagnosis, too. There can be a lot to process and a lot of emotions to try and deal with, not necessarily just immediately, but potentially also over time (days, weeks, months, years) - although the experience can obviously vary a lot from person to person. This article explains more:

    NAS - How will I feel after receiving an autism diagnosis?

    I also felt exhausted in the period immediately after my diagnosis. The process had felt extremely stressful, and I needed (although wasn't actually able, for reasons that aren't relevant here) to recuperate for a while in super-low demand mode.

    You might also find it helpful to read through the NAS's other Diagnostic hub resources - which also include, for example: 

    NAS - Emotional support for family members after a diagnosis

    If  your daughter hasn't yet seen them, perhaps you could suggest that she has a look through the "After diagnosis" section?

    She might also find it helpful to join this community.

    Her diagnostic report might suggest some follow up actions. For example, therapy or counselling are often recommended, for our GPs to arrange. 

    If so, and before arranging anything, she might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful:

    The Autistic Survival Guide to Therapy

    Finally, I'll just mention a couple of other books that I and others have found helpful early on in our post-diagnosis journeys - the first one might make for a timely and thoughtful gift:

    Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!

    How to Be Autistic (free download currently available via this page)

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