I went through the diagnosis process through a Right to Choose provider. The assessment was at the end of May and they said I would hear back within 4 weeks but did not give me a date and time for the results. Four weeks has now passed and I have sent emails chasing them up several times. I finally got a response saying they are having a meeting to discuss my assessment results on Wednesday. They still didn't say when I would har back.
I'm feeling annoyed that it is late and anxious about when I will hear. As I didn't know when I would get the call I have been on a state of alert for the last few weeks as I could hear from them at any time. I think it's badly planned as they must know that autistic people don't deal well with uncertainty. I would feel so much better if I had a date and time for a follow-up appointment. It feels so out of. my control - which I'm not good with.
In the meantime I feel like I'm stuck in limbo. Autism has become my latest special interest and I have been reading every book I can get hold of from the library and researching online. I feel worried that during my assessment they didn't ask about certain things (such as meltdowns) so I didn't get to give them a full picture. Also my husband was my informant (as parents don;t believe in autism) but he obviously wasn't able to give information about my childhood and I felt some of the answers he gave weren't accurate.
I'm scared that I will be misdiagnosed. I have identified myself as autistic but if they tell me that I'm not it feels like I will be back to square one in some ways. Also I'm currently off sick from work with stress and due to return soon. My work are arranging an occupational health assessment and I feel like it will help me to get reasonable adjustments if I have formal diagnosis. If I don't I feel like work will be less likely to support me. The wait for the assessment results definitely hasn't helped my stress and anxiety! At least when I get the results I will be able to move on either way.
My husband doesn't understand how I feel and says it makes no difference what the results are as I'm still the same person either way.
Anybody else relate to these feelings while waiting for the outcome of their assessment or in a similar situation?
