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Diagnosed ADHD, awaiting Autism Result

Mister_B

Hi,

I'm male, 36 and newly diagnosed ADHD. I've also have my Autism assessment with my feedback appointment around 2 weeks away. 

Currently out of work and struggling. 

I'm just looking for advice and guidance really. 

For the last year, it seems like everything has gotten worse which is why, after advice, I finally asked to be referred to be assessed. 

Now I'm at the end stages, my anxiety has gone through the roof and it feels like I can no longer nor do I want to mask anymore. 

I keep overthinking that I've not given enough information for the Autism side of things and that I won't be diagnosed. After researching everything I possibly could, I feel the Autism fits more than the ADHD. 

Another worry is then having support in place, if I am diagnosed. 

With the ADHD, I kind of feel like I've been left to it. I was added to a waiting list for titration but advised it may take a while and that was it.

I am also going to make contact with ADHD charities and support for it but for the Autism I just wanted to know how others have coped with it. How to take your mind off it while waiting a result and what you did after being diagnosed. 

Any advice is welcome. 

Thanks,

Mister B

Parents

  • I didn't research much into autism. I wrote my own lifetime history, got medical evidence and letters from my parents. I also looked at the DSM criteria for the 3 components needed to make sure that I understood and could see how these wove themselves fitted into when I was writing my lifetime history. I sent them my lifetime history via email before assessment.

    They referred to the lifetime history report a few times in my final report.  The ADOS test itself there wasn't much you needed to bring to it and they will take control of it themselves.

    I don't know what support you are looking for, I am not sure that you can claim benefits right away with PIP. You need to be diagnosed for 6 months. Also, other than a feedback after your report you are likely not to get much more if you are not above level 1 in some areas and that is if your area provides funding. After diagnosis I attended a group on Zoom.  The fact that you have waited to now may suggest you are not severely impacted.

    Have your explored the anxiety for a diagnosis. I know some people who are autistic who have full time jobs. I am not sure why you are not able to work. Perhaps something like a burnout has effected you. If overwhelming you could try and look at your life and manage it. You won't get any help for this unless you are classed as having higher needs if your borough fund it. 

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  • I didn't research much into autism. I wrote my own lifetime history, got medical evidence and letters from my parents. I also looked at the DSM criteria for the 3 components needed to make sure that I understood and could see how these wove themselves fitted into when I was writing my lifetime history. I sent them my lifetime history via email before assessment.

    They referred to the lifetime history report a few times in my final report.  The ADOS test itself there wasn't much you needed to bring to it and they will take control of it themselves.

    I don't know what support you are looking for, I am not sure that you can claim benefits right away with PIP. You need to be diagnosed for 6 months. Also, other than a feedback after your report you are likely not to get much more if you are not above level 1 in some areas and that is if your area provides funding. After diagnosis I attended a group on Zoom.  The fact that you have waited to now may suggest you are not severely impacted.

    Have your explored the anxiety for a diagnosis. I know some people who are autistic who have full time jobs. I am not sure why you are not able to work. Perhaps something like a burnout has effected you. If overwhelming you could try and look at your life and manage it. You won't get any help for this unless you are classed as having higher needs if your borough fund it. 

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