(Peri)menopause and autism

I am female, 47 years. It is only a year ago a therapist suggested I was autistic. I have always had symptoms/traits and was different than other people, but autism was never mentioned. After age 40, things got incredibly much worse, my sensory sensitivities, my ability to tolerate stress/change, my social abilities. I have read several papers claiming that estrogen has a protective effect on the brain, reducing autistic traits. This is the reason autistic traits worsen when one approaches menopause, as estrogen levels decline. I have not had an easy life, and to be honest, I am feeling desperate realizing that the future will be even worse. I can barely take a bus ride due to the insane amount of smell and noise (despite headphones and other ways of protecting myself). I cannot eat in a restaurant or go to the cinema. I cannot work anymore, the interaction with others at the work place became unbearable. I have problems eating, because I am insanely focused on the details of the food, and I refuse to eat anything that looks/feels/tastes/smells slightly different than expectations. I am only approaching menopause, not even in it. I am terrified how much worse I will get. I wonder if others have any experiences to share. 

Parents
  • Hi and welcome to the community. I'm a post menopausal woman, and I think that my autistic traits have got more pronounced as I have aged, although I thought that happened to men as well as women?

    I found working difficult, but I was able to reduce my hours to part time in the 7 years leading up to my retirement, which helped me cope. However if that is not an option for you, I suggest you ask your GP to refer you for a formal diagnosis of autism. Here is a link to the articles on this website about getting a diagnosis:

    https://www.autism.org.uk/advice-and-guidance/diagnosis

    I hope that this community gives you a feeling of being supported and not alone in having these issues.

  • Thank you very much for your answer. I have an autism assessment in 10 days. I assume a formal diagnosis will help me somewhat (being more accepting towards my problems). It is interesting if you think males also get more pronounced traits with age, I have not heard that before. For my assessment, one of my biggest worries is that I will be told that if my problems were not equally serious my entire life, then it cannot be autism. I was recently in contact with an autism assessment team due to the assessment of my daughter, and I experienced the person I spoke to as being somewhat outdated in their approach, with a focus on male stereotypes and a focus on low functioning traits. For example she said if my daughter can speak full sentences and the Kindergarden did not make complaints about her behavior, then it cannot be autism -  even if the school sent almost daily complaints for the past 10 years. As far as I understand, there are levels of autism (at least in the country I live in), and for example language problems are not pronounced at level 1. The lady said if traits were not labelled as severely different from 'normal' at age 3 to 5, then it is not autism. Such statements make me worried. I saw a scientific paper about autism in females and more than 50% of the participants first received their diagnosis at menopause. For all of these participants, their problems must have been missed earlier in life (not labelled severe enough to warrant an assessment/diagnosis).

Reply
  • Thank you very much for your answer. I have an autism assessment in 10 days. I assume a formal diagnosis will help me somewhat (being more accepting towards my problems). It is interesting if you think males also get more pronounced traits with age, I have not heard that before. For my assessment, one of my biggest worries is that I will be told that if my problems were not equally serious my entire life, then it cannot be autism. I was recently in contact with an autism assessment team due to the assessment of my daughter, and I experienced the person I spoke to as being somewhat outdated in their approach, with a focus on male stereotypes and a focus on low functioning traits. For example she said if my daughter can speak full sentences and the Kindergarden did not make complaints about her behavior, then it cannot be autism -  even if the school sent almost daily complaints for the past 10 years. As far as I understand, there are levels of autism (at least in the country I live in), and for example language problems are not pronounced at level 1. The lady said if traits were not labelled as severely different from 'normal' at age 3 to 5, then it is not autism. Such statements make me worried. I saw a scientific paper about autism in females and more than 50% of the participants first received their diagnosis at menopause. For all of these participants, their problems must have been missed earlier in life (not labelled severe enough to warrant an assessment/diagnosis).

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