Note: This account only posts external research that has been approved by the NAS research team.
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This doctoral project is conducted by lead researcher Orsolya Barabas (trainee clinical psychologist, Salomons Institute of Applied Psychology, Canterbury Christ Church University), Dr Kathryn Stevenson (academic supervisor and clinical psychologist), and Dr Sophie Doswell (external supervisor and clinical psychologist, South London and Maudsley NHS Foundation Trust).
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What is the project about?
Catatonia is a state in which someone is awake but does not seem to respond to other people and their environment. It can affect one’s movement, speech and behaviour in many different ways. Catatonia-related deterioration might be less easy to recognise when the difficulties appear gradually and when autistic people experience it. This is because some of the signs, such as repeating movements or phrases, can also be characteristic of autism. Currently, we do not know enough about the personal experiences of autistic people who have experienced catatonic deterioration.
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Who are we looking for?
We would like to speak to adults in England who have a diagnosis of autism and have experienced catatonic deterioration.
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What does taking part involve?
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Have a brief phone/online call to discuss your participation and any reasonable adjustments needed (5 min).
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Complete a short questionnaire about catatonic experiences (5 min).
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Have a chat with the lead researcher in person or online (1 hour).
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Optional feedback on any aspect of the research including accuracy of interview transcript.
More information at the following link: https://cccusocialsciences.az1.qualtrics.com/jfe/form/SV_8JiyN6lVBWmFeZ0
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Reimbursement details
You will be offered a £10 voucher for your time and effort.
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Contact details
Orsolya Barabas, lead researcher
Email: o.barabas425@canterbury.ac.uk
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