Older adult assessment delays

Im 68 so I've been waiting a long time to get to within a year of diagnosis then I get a letter telling me that funding has been diverted to childrens services and my long wait is now extended by at least 3 years expecting to get longer as they are reduce the child list. 

As a self identifying autistic person I find this change really difficult to process. I agree that they should work on reducing child waiting list but as I'm in wales there's no RTC and as a pensioner I'm unable to self fund, I'm already self funding therapy to help manage the wait, it will have to stop soon. 

Ive found it really hard to access services, mostly medical, I need especially due to not being able to use the phone. Ive tried advocasy services which havent made a difference, I was hoping that a diagnosis would enable me to access services specific to autistic people. I have been triaged and its deemed approptiate to fully assess. 

My questions are will a diagnosis actually make any difference or am I just wasting time and money. 

Im a carer of a nurodivergent teen and this gets harder as I get older and communication skills deteriate along with executive functioning skills. 

Is there another alternative or do I have to accept not knowing and find other ways to get support for me and my lad as he reaches adulthood. 

Any advice gratefully received

Parents
  • Self diagnosed doesn't mean anything different, if you know you know, no support will open up with the diagnosis, it's hard but try and put it to one side and do your own research how to help with your struggles, because the diagnosis when it comes doesn't open support within the NHS

    Well that's my experience 

Reply
  • Self diagnosed doesn't mean anything different, if you know you know, no support will open up with the diagnosis, it's hard but try and put it to one side and do your own research how to help with your struggles, because the diagnosis when it comes doesn't open support within the NHS

    Well that's my experience 

Children
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