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Is Autism too inclusive?!

Mads

I caught the tail end of a discussion on the radio last night. It was (I think) regarding Professor Dame Uta Frith.

“The spectrum has gone on being more and more accommodating, and I think now it has come to its collapse,” said Professor Dame Uta Frith (UCL Cognitive Neuroscience) on the widening autism spectrum and the growing challenges in diagnosis.

I haven't got a definitive reference but there are online newspapers that have the story (I just don't want to sign up to them to read the full article).

All thoughts welcome. 

Joey. 

Parents

  • As a person with slightly higher needs (not low and not high), I think it’s needs to be more inclusive, it’s not inclusive enough.

    I don’t think the problem is over inclusivity, I think the problem is Professor Dame Uta Frith’s ‘Spectrum’ is not fit for purpose.

    I am not opposed to the theory of the ‘Spectrum’ of Autism but when it’s the only model we have in the UK to gage presentation and need level, it falls very short and lets the community down terribly.

    Just because someone studied Autism to a Doctor level, It does not make them the geru of autism and it definitely does not compensate for lived experience.  

    Whilst I understand she has the right to her opinion particularly as she contributed to the design of ‘the spectrum’ but instead of blaming the community or diagnosis criteria as being to inclusive, maybe more self reflection is needed.  Maybe the first place to start would be reflecting and understanding that her ‘Spectrum’ system is fundamental flawed.

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  • As a person with slightly higher needs (not low and not high), I think it’s needs to be more inclusive, it’s not inclusive enough.

    I don’t think the problem is over inclusivity, I think the problem is Professor Dame Uta Frith’s ‘Spectrum’ is not fit for purpose.

    I am not opposed to the theory of the ‘Spectrum’ of Autism but when it’s the only model we have in the UK to gage presentation and need level, it falls very short and lets the community down terribly.

    Just because someone studied Autism to a Doctor level, It does not make them the geru of autism and it definitely does not compensate for lived experience.  

    Whilst I understand she has the right to her opinion particularly as she contributed to the design of ‘the spectrum’ but instead of blaming the community or diagnosis criteria as being to inclusive, maybe more self reflection is needed.  Maybe the first place to start would be reflecting and understanding that her ‘Spectrum’ system is fundamental flawed.

Children
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