• Replies 18 replies
  • Subscribers 85 subscribers
  • Views 763 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

I searched for "autism and aging" in the NAS website and got no results.  A call to share and discuss resources on this topic.

Phased

A recent post from @TheCatWoman raised the subject of experiences and challenges of being an older autistic person.

Overall, there the conversation that followed was of strong support for collective advocacy, collaboration with autism organisations, and research that identifies the needs, barriers, and wellbeing factors for older autistic adults—particularly to improve healthcare, social care, diagnosis processes, and post-diagnostic support.

Yet when I searched for "autism and aging" in the NAS website I got no results.

This suggests that there is a need for us to get together to support one another on this topic.

I suggest that we might share and discuss resources on the topic of autism and aging through this thread.

Best Wishes

Parents Reply
  • in reply to ArchaeC

    Yes, it's interesting that although "every autistic person is different" that there is a sense of commonality in experience  

    I suspect that the course would be good to go to for a variety of reasons too.  And yes they could cost a fortune.

    The key strategies for a healthier later life the course suggest include rebuilding structured routines, leveraging special interests, and ensuring environmental modifications for comfort.

    perhaps autistic people in later life don't necessarily need courses to think about and organise these things ourselves?

Children
  • in reply to TheCatWoman

    I relate to this totally. Thank you for putting into words what I've been unable to do. 

    My challenge is getting my wife to fully appreciate this after 30 years together. She knows it's mostly not worth asking me if I want to go to some event with her, but I think my reluctance still annoys her. If only I had the capability to interpret her emotions!

  • in reply to TheCatWoman

    It is suggested that routines are generally good for autistic people  - praps tha's why we can be said to be resistant to change.  Myself i'm alright with change if i have time to consider and adjust to it - and ideally i do it on my own terms...

    hehe meanwhile "au contraire"   I would observe that you are one of the biggest contributors and participants to this social network :-) 

    I agree that this can be engaged with more on our own terms tho' and that it can be hard work in some sorts of company.

    yes "pass time with good company" :-) that's meant to be henry VIII isn't it - hehe bit late for your era of interest isn't it :-)

  • in reply to Phased

    I have my daily routines, and always have.

    One of the things I've often seen is about having good social networks and not being isolated, I dont' want to be around people most of the time, I don't do groups and enjoy my own company. Why would being around loads of others be good for me, I've felt lonelier in crowds and groups than I have on my own. Of course there are times I'd like to be in good company, but the operative word is "good" and to me most people are terrible company