Getting together with a research request

Afte seeing another request for participants in research about ASC in young people, I thought 'again, why is there never anything aimed at people my age?' There are so many of us latelings here and I feel that we're being forgotten AGAIN, as we have through so much of our lives.

I was wondering if there would be any interest in writing a joint letter to research organisations asking for research into our difficulties and experiences and as we move into old age how that will affect the services we recieve, from what I can see organisations who deal with older people haven't a clue about autism. This needs to change.

How about it folks? I'm happy to write the letter, but would love to include your concerns, to do it as a group, a group will have more power, by weight of numbers alone, but also because we experience the world differently. I would of course post the proposed letter here for your comments before sending it

Parents Reply
  • Thanks Bunny, these are all places that we can write too, maybe one of the things we can ask for, is for the research results to be more widely available? It's all very well the research being out there, but if it's hard to access then it's only really going to help a small group of researchers and maybe the organisations they work for. I think many of us need something we can point to, print out and take to doctors, employers etc. Without the weight of an academic institution behind us it's to easy for us to be dismissed and maybe misdiagnosed.

    it would be really good if NAS could help with this too.

Children
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