Getting together with a research request

Afte seeing another request for participants in research about ASC in young people, I thought 'again, why is there never anything aimed at people my age?' There are so many of us latelings here and I feel that we're being forgotten AGAIN, as we have through so much of our lives.

I was wondering if there would be any interest in writing a joint letter to research organisations asking for research into our difficulties and experiences and as we move into old age how that will affect the services we recieve, from what I can see organisations who deal with older people haven't a clue about autism. This needs to change.

How about it folks? I'm happy to write the letter, but would love to include your concerns, to do it as a group, a group will have more power, by weight of numbers alone, but also because we experience the world differently. I would of course post the proposed letter here for your comments before sending it

Parents
  • I agree with the thoughts. Being a 'Lateling' myself with very little support post diagnosis apart for  an hour once a week for six weeks course trying to describe what autism is.

    There is no support in Scotland unless you are in the big cities. The issue is what support do we need as it will differ between individuals. I believe you should be given some psychological therapy to support your diagnosis.

    Employment is another avenue that needs exploring as there are so many stories of discrimination.

Reply
  • I agree with the thoughts. Being a 'Lateling' myself with very little support post diagnosis apart for  an hour once a week for six weeks course trying to describe what autism is.

    There is no support in Scotland unless you are in the big cities. The issue is what support do we need as it will differ between individuals. I believe you should be given some psychological therapy to support your diagnosis.

    Employment is another avenue that needs exploring as there are so many stories of discrimination.

Children
No Data